Back

Patients Epilepsy

How many different medications have you tried?

37 views
2 times supported
5 comments

Margarita_k

Community manager

21/03/2018 at 18:31

Good advisor

Margarita_k

Community manager

Last activity on 07/10/2020 at 11:39

Joined in 2016

1,195 comments posted | 30 in the Epilepsy Forum

1 of their responses was helpful to members

Rewards

Good Advisor
Contributor
Messenger
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

How many different treatments have you tried before finding the one(s) that work the best? How much time did it take you on the whole?

Have you ever stopped taking your medications? Why was that? What was the effect?

All comments

William.ra

02/04/2018 at 15:58

William.ra

Last activity on 13/06/2022 at 18:44

Joined in 2018

3 comments posted | 3 in the Epilepsy Forum

Rewards

Explorer

View profileView Add a friendAdd Write

I have taken 4 medications

How many different medications have you tried? https://www.carenity.co.uk/forum/epilepsy/your-opinion-on-epilepsy-treatments/how-many-different-medications-have-you-tried-2233 2018-04-02 15:58:19

Annalong

23/04/2018 at 12:21

Annalong

Last activity on 03/04/2025 at 02:54

Joined in 2017

9 comments posted | 7 in the Epilepsy Forum

Rewards

Contributor
Explorer

View profileView Add a friendAdd Write

I have taken at least 9, two of which I have been allergic to Keppra and another one I sant remember the name of both made me violently ill, I couldn't eat, sleep, think straight, walk, keep water down so I stopped taking them and got on to my epilepsy nurse. And gave out to the neurologist for doing it to me in the first place - they like to trsat you like lab rats don't they ?

How many different medications have you tried? https://www.carenity.co.uk/forum/epilepsy/your-opinion-on-epilepsy-treatments/how-many-different-medications-have-you-tried-2233 2018-04-23 12:21:44

lesmal

Ambassador

02/05/2018 at 16:07

Good advisor

lesmal

Ambassador

Last activity on 29/04/2025 at 19:36

Joined in 2018

1,462 comments posted | 79 in the Epilepsy Forum

69 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

The list is too long to remember, and also what worked and what didn't.

I have never stopped taking my medication in the 44 years I've had epilepsy... It's not worth risking!

See the signature

Les

How many different medications have you tried? https://www.carenity.co.uk/forum/epilepsy/your-opinion-on-epilepsy-treatments/how-many-different-medications-have-you-tried-2233 2018-05-02 16:07:52

Sunshine5

21/05/2018 at 12:42

Good advisor

Sunshine5

Last activity on 27/04/2025 at 05:04

Joined in 2017

75 comments posted | 29 in the Epilepsy Forum

16 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

I have taken many medications since I was diagnosed when 4 months old. Im turning 38 very soon and very rarely miss a dose.

I wouldn't stop taking my meds as even taking them diligently and having had surgery 6 years ago, has not stopped my seizures. It has reduced the frequency of episodes though.

Since taking Clobazam with Epilim, 4 years ago, my fits are stable and I have 4 to 5 complex partial absences a month.

See the signature

syusuf

How many different medications have you tried? https://www.carenity.co.uk/forum/epilepsy/your-opinion-on-epilepsy-treatments/how-many-different-medications-have-you-tried-2233 2018-05-21 12:42:30

monaco

25/06/2018 at 13:05

monaco

Last activity on 11/09/2021 at 10:13

Joined in 2015

2 comments posted | 1 in the Epilepsy Forum

Rewards

Explorer
Evaluator

View profileView Add a friendAdd Write

I have now tried 17 or 18 different meds since birth. Now 52. Nothing else left - waiting for new meds! Also have had VNS for 18 years!

How many different medications have you tried? https://www.carenity.co.uk/forum/epilepsy/your-opinion-on-epilepsy-treatments/how-many-different-medications-have-you-tried-2233 2018-06-25 13:05:23

Members are also commenting on...

Articles to discover...

10/02/2025 | News

Epilepsy and sleep: A complex relationship that impacts health and well-being

30/10/2024 | Advice

Epilepsy and pregnancy: What should you know before conception?

12/02/2024 | News

Epilepsy surgery: everything there is to know!

13/02/2023 | Advice

How to live well with epilepsy?

11/02/2019 | Advice

Understanding epilepsy: what are the different types of seizures?

20/09/2018 | News

Removing 'zombie' cells deters Alzheimer's in mice

24/10/2018 | News

Epilepsy medicines pregabalin and gabapentin to be reclassified as class C drugs

27/08/2018 | News

Young Scot ‘crippled’ by epilepsy gets first dose of medicinal cannabis

How many different medications have you tried?

All comments

Give your opinion

Members are also commenting on...

Articles to discover...

Medication fact sheets - patient opinions...