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Cancer, long term effects from treatment
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robjmckinney
AmbassadorGood advisor
Just had my forth yearly assessment over the phone with a nurse within a ongoing medical survey of after effects of treatment. I have suggested that better information of the after effects of radiotherapy be supplied to patients rather than just letting us sink or swim. A list of these effects could be the answer plus a patient led solution to the many problems that occurs would be useful. From the initial burns to the long term damage caused to bone, tissue and muscle. Information at the end of the day will improve our lives and treatment outcome.
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robjmckinney
JosephineO
Community managerGood advisor
@robjmckinney Hopefully they xwill take what you said on board...That is what Carenity hopes to do, to make the petients' voices heard so that treatment and care can be improved.
One day at a time, welldone for speaking your mind.
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Josephine, Community Manager
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robjmckinney
AmbassadorGood advisor
One of the major issues for me post treatment from Head and Neck cancer in 2014 that dog my life long term. After the Lymphedema issues what are long term, saliva glands destroyed, massive dental issues, jaw bone dead and damage to the gums. I now find my neck muscles have been weakened and badly damaged with no cure the oncologists tell me. I have found by using heat pads when the neck is in a very painful spasm a short term solution. But clearly radiotherapy does do massive damage to our bodies long term and we must be watchful for these long term issues. Perhaps sharing how we resolve such issues as the Doctors simply shrug their shoulders and say tough we have to live with it!