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Oxygen therapy
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Dodger99
I'm so pleased I was prescribed oxygen it has given me a new lease of life and because I'm now far more active I'm slightly less dependent on oxygen.
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Dodger99
Margarita_k
Community managerGood advisor
Hi @Dodger99 , thanks for your comment! What type of oxygen therapy were you prescribed?
To all:
Let us know what type of oxygen therapy you were prescribed? What are the pros and cons?
Don't be shy to share! Other members will be grateful for your stories
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Community Manager
Dodger99
When I was originally prescribed oxygen therapy I was prescribed 16 hours per day at .75ltr. This, regrettably, didn't work out as intended and a few months later following a complete collapse I was prescribed a bipap which I had to use for 8 hours a day. Basically overnight. This has done the trick as the pulmonary hypertension I did suffer is no longer. I am still using the bipap for 8 hours at 0.5ltr but am now self managing my oxygen on a 'when needed basis' rather than a specified time period.
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Dodger99
oldman
Hi all.
I'm a new member and was told by my doctor 2 years ago I have COPD (Emphysema) I have to inhalers 1 blue and 1 brown which I have been using morning and evening over this time , I am always very tired and sleep a lot I nod of at the drop of a hat and then find it difficult to wake up, I don't sleep well at night, and wake feeling like I need a good nights sleep, if I do try to do anything 2 hours is my limit then spend the rest of the day asleep.
My chest is bad first thing in the morning and gets tight at night the inhalers do help but not much would Oxygen therapy help me, I always feel as though I need to inhale more air than I can take in.
annann
I would like to know if anybody has had Activated Oxygen Therapy via an activated air device and what was their experience?
ruth65
Good advisor
I have been on oxygen for a number of years now around 15 at least, initially it was 2 litre flow rate for 16 hours, but this past couple of years things have got harder to do without severe breathlessness so I now have portable oxygen which I use when ever I need to go out and this again is at 2 litre. I also use my oxygen concentrator when at home for when doing any housework which enables me to do more. I have it piped around the house with a device upstairs so I can switch it to either upstairs or downstairs. Only downside I have found is having the oxygen tubing all over the place when in use and you have people visit, particularly little ones although my young grand children have always known me with oxygen and are very good and not to often getting tangled up. Certainly lets me do things I could not do without it.
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Ruth Gosden
Unregistered member
hi i find it harder to do anything ive been on oxogin now for over eight years im on three inhailers one i have two puffs in morning venterlin as four tmes a day two puffs and two puffs of the other on twice aday and i have portable it gets me down alot and i also sleep alot ive tried different breathing programes but none help
ruth65
Good advisor
I also just of late have the feeling of extreme tiredness in the late afternoon and I do not sleep at night as well as I use to, not sure whether to do with the oxygen or me being to lazy. Hard to get up and motovated when you know its going to cause more breathlessness.
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Ruth Gosden
Unregistered member
hi ruth i am just like you most days mind you i get so mad with myself because i know i can do better but im to scared to even try you are not alone
ruth65
Good advisor
May just be the way of having COPD as my pulmonary nurse has asked me in the past how well I sleep os maybe they expect to hear we don't as time goes on.
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Ruth Gosden
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Margarita_k
Community managerGood advisor
If your type of COPD causes problems getting enough oxygen into your blood and getting rid of carbon dioxyde, oxygen therapy can be very helpful. It can :
- reduce shortness of breath
- reduce stress on your heart
- help you exercise longer and harder, and stay active
- help you think and remember things better
- help you sleep better
Have you tried this type of treatment? Can you share your feedback with us ? Your opinion would be very welcome
Margarita