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Patients Epilepsy

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Topic of the discussion


Posted on
Good advisor

Hello,

Epilepsy is a challenging condition that can greatly affect the patient's everyday life. Depending on the form of epilepsy and the severity of its symptoms, the patient can find it difficult to follow the usual routine, like going to work.

Did you have to be absent from work a lot due to your epilepsy? What was it for - hospitalisation, doctor appointments, etc.? Did you tell your boss/colleagues about your diagnosis? What was their reaction?

Finally, did you have to stop working due to your epilepsy? If so, are you receiving any financial help?

Thank you in advance for sharing your experiences and helping other patients who are in the same situation as you.

 

Beginning of the discussion - 15/01/2018

Epilepsy and work

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 my daughter is studying beauty, please god if she applys for a job should she tell them she has epilepsy as I feel if they know they wont employ her

Epilepsy and work

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I had my first seizure. At work.So they have known about it From the start. Took about 6 months to get my first diagnosis. They couldn’t have been any more supportive. My manager is always there if I need a word. There always accommodating to any hospital appointments or anything relating to my epilepsy’s. I do feel a bit judged when it comes to overtime. For a time they would avoid asking me. I like doing overtime. So I had a word with my team leaders and managers. And they were only trying to be nice! Much appreciated. But mostly they have been great especially since my full diagnosis with my second seizure and September 

Epilepsy and work

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I am a a good plasterer my journeyman was a great guy but needed a driver at the end so I was quickly  dropped when my apprenticeship was complete  I did manage after almost 40 job applications to get a job this was almost 30 years ago  it was just a packing job in a meat factory so many employer's are bias towards our condition and only think of us as a liability and are often left last 

Epilepsy and work

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I work from home, but the one thing I find is that I get very depressed and find it hard to be with lots of people epilepsy has changed me.