Familial dysautonomia Forum
Ongoing discussions - Familial dysautonomia
Current topics:
-
- Arnold Chiari Malformation
Hi, I was diagnosed with Arnold Chiari Malformation Type1 June 2006. This is a rare condition of the brain. I am still learning about this condition as nothing was ever explained to me by my neurologi
-
- Trigeminal neuralgia
Hi I found out in December 2016 that an ear and sinus pain was an neuralgia pain called trigeminal neuralgia. I'd never heard of it before. It's a rare disease or condition without a c
-
- Arnold chari malformation
Hi Folks I am new on here I was looking to see if anyone on here is suffering from an Arnord chari malformation?
See all the discussions
Current topics:
-
- What is the most frustrating or difficult aspect of living with a rare disease?
Hello everyone, How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha
-
- How were you diagnosed with a rare disease?
Hello everyone, How are you doing? I thought I'd create this discussion to talk about being diagnosed with a rare disease! What were the first symptoms you experienced? How were you diagnosed? @Hyak
See all the discussions
Current topics:
-
- Coronavirus (COVID-19) - information and precautions
Hello dear members, I thought I would open this discussion as the Coronavirus (COVID-19) has been a strong news topic of late and is a pertinent topic for us here, as those with chronic health conditi
-
- Is a third wave of COVID-19 inevitable?
Hello everyone, How are you today? Many of us in the UK want to turn the page and join together as a family to celebrate the festive season. But it's important that we not lose sight of what we a
-
- COVID-19 vaccine: What do you think?
Hello everyone, How are you today? The pharmaceutical groups Pfizer (USA) and BioNTech (Germany) announced on Monday 9 November that their vaccine candidate is 90% "effective" in preventing Covid-
See all the discussions
News and information
Fact sheet