Familial dysautonomia
Forum

Current topics:

• - Arnold Chiari Malformation
  Hi, I was diagnosed with Arnold Chiari Malformation Type1 June 2006. This is a rare condition of the brain. I am still learning about this condition as nothing was ever explained to me by my neurologi
• - Trigeminal neuralgia
  Hi    I found out in December 2016 that an ear and sinus pain was an  neuralgia pain called trigeminal neuralgia.  I'd never heard of it before.   It's a rare disease or condition without a c
• - Arnold chari malformation
  Hi Folks I am new on here I was looking to see if anyone on here is suffering from an Arnord chari malformation?      

Current topics:

• - What is the most frustrating or difficult aspect of living with a rare disease?
  Hello everyone,  How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha
• - How were you diagnosed with a rare disease?
  Hello everyone, How are you doing? I thought I'd create this discussion to talk about being diagnosed with a rare disease! What were the first symptoms you experienced? How were you diagnosed? @Hyak

Current topics:

• - Coronavirus (COVID-19) - information and precautions
  Hello dear members, I thought I would open this discussion as the Coronavirus (COVID-19) has been a strong news topic of late and is a pertinent topic for us here, as those with chronic health conditi
• - Is a third wave of COVID-19 inevitable?
  Hello everyone,  How are you today? Many of us in the UK want to turn the page and join together as a family to celebrate the festive season. But it's important that we not lose sight of what we a
• - COVID-19 vaccine: What do you think?
  Hello everyone, How are you today?  The pharmaceutical groups Pfizer (USA) and BioNTech (Germany) announced on Monday 9 November that their vaccine candidate is 90% "effective" in preventing Covid-