Familial dysautonomia
Forum

Current topics:

• - Living with Usher syndrome: Share your experience!
  Hello, am new here. I have usher syndrome and have been registered blind for quite a few years. Also have glaucoma which has closed down one eye and affected central vision in other eye.  I manage q

Current topics:

• - Falling down stairs
  I have suffered with dystonia since birth and it has got worse over the years, for the last few weeks as I am trying to gondown the stairs my leg tries to make me fall down the stairs, I'm wondering
• - Doctorate Thesis-Online study about Chronic Pain & Stigma
  Hello,I am currently doing a doctoral research programme in Clinical Psychology, and I'm looking for people to contribute to the evidence base on chronic pain, using an anonymous questionnaire for UK
• - Arnold Chiari Malformation
  Hi, I was diagnosed with Arnold Chiari Malformation Type1 June 2006. This is a rare condition of the brain. I am still learning about this condition as nothing was ever explained to me by my neurologi