Parry-Romberg Syndrome
Forum

Current topics:

• - Living with Usher syndrome: Share your experience!
  Hello, am new here. I have usher syndrome and have been registered blind for quite a few years. Also have glaucoma which has closed down one eye and affected central vision in other eye.  I manage q

Current topics:

• - Biotherapy and COVID-19: Has the virus had an impact on your treatment?
  Hello everyone How are you doing? Biotherapies (Enbrel, Humira, Remicade, Simponi...) are treatments that lead to a decline in immune responses (immunosuppressants).Patients who use these treatments a
• - Hello everybody !
  Hello, how are you ?

Current topics:

• - How do you treat your atopic dermatitis or eczema? What has worked for you?
  Good morning everyone,  How are you today? How do you treat your atopic dermatitis and eczema? Is it effective? Do you take or use a long-term treatment, or do you tend to just treat flares?@LisaB
• - CBD for eczema/atopic dermatitis?
  Hi all, I was talking with a friend about our eczema and she was telling me that she was reading that CBD may have a beneficial effect on it. Apparently now there are creams and other skin products co
• - Eczema - How to cope with scratching?
  Hi,  I’ve had eczema all my life but is comes and goes. As I’ve got older it’s come back and is really quite painful. The weather plays some part in it but my scratching is a real issue. I wak