Ataxia-telangiectasia
Forum

Current topics:

• - Doctorate Thesis-Online study about Chronic Pain & Stigma
  Hello,I am currently doing a doctoral research programme in Clinical Psychology, and I'm looking for people to contribute to the evidence base on chronic pain, using an anonymous questionnaire for UK
• - Arnold Chiari Malformation
  Hi, I was diagnosed with Arnold Chiari Malformation Type1 June 2006. This is a rare condition of the brain. I am still learning about this condition as nothing was ever explained to me by my neurologi
• - Trigeminal neuralgia
  Hi    I found out in December 2016 that an ear and sinus pain was an  neuralgia pain called trigeminal neuralgia.  I'd never heard of it before.   It's a rare disease or condition without a c

Current topics:

• - Living with Usher syndrome: Share your experience!
  Hello, am new here. I have usher syndrome and have been registered blind for quite a few years. Also have glaucoma which has closed down one eye and affected central vision in other eye.  I manage q

Current topics:

• - COVID booster vaccine: What do you think?
  I am hoping that I get the chance to have the covid booster ,I cant wait as then I shall know I am fully protected what does everyone think are you all going to have this if we are offered it and is t
• - Given the COVID-19 pandemic and vaccine, do you feel comfortable travelling this summer?
  Hello everyone, How are you doing today? Are you going on holiday this summer? Do you have any concerns about travelling due to the COVID-19 pandemic? Are you going to get vaccinated so you can go
• - COVID-19 vaccine: What do you think?
  Hello everyone, How are you today?  The pharmaceutical groups Pfizer (USA) and BioNTech (Germany) announced on Monday 9 November that their vaccine candidate is 90% "effective" in preventing Covid-