Lesch-Nyhan syndrome
Forum

Current topics:

• - Arnold Chiari Malformation
  Hi, I was diagnosed with Arnold Chiari Malformation Type1 June 2006. This is a rare condition of the brain. I am still learning about this condition as nothing was ever explained to me by my neurologi
• - Trigeminal neuralgia
  Hi    I found out in December 2016 that an ear and sinus pain was an  neuralgia pain called trigeminal neuralgia.  I'd never heard of it before.   It's a rare disease or condition without a c
• - Arnold chari malformation
  Hi Folks I am new on here I was looking to see if anyone on here is suffering from an Arnord chari malformation?      

Current topics:

• - What is the most frustrating or difficult aspect of living with a rare disease?
  Hello everyone,  How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha
• - How were you diagnosed with a rare disease?
  Hello everyone, How are you doing? I thought I'd create this discussion to talk about being diagnosed with a rare disease! What were the first symptoms you experienced? How were you diagnosed? @Hyak

Current topics:

• - Coronavirus (COVID-19) - information and precautions
  Hello dear members, I thought I would open this discussion as the Coronavirus (COVID-19) has been a strong news topic of late and is a pertinent topic for us here, as those with chronic health conditi
• - Telemedicine and COVID-19: What do you think?
  Hello everyone, How are you today? In recent months following the COVID-19 crisis, we've seen the NHS and health care industry turn more and more to telemedecine. Now, GPs and other health professi
• - Are you going to continue to wear a face mask after you've had both vaccine jabs?
  I've been thinking about this since I had my first jab 3 weeks ago. I see many advantages in continuing to wear a face mask ~LESS pollution, less bugs leading to chest and other infections, lowering