Multiple sclerosis Forum

1,643 members
244 discussions

How to establish the right diagnosis of multiple sclerosis? How to avoid a flare-up? Where is the current medical research? Join our patient community and family members of patients! Thousands of people are waiting for you to share information, exchange experiences and provide you with advice and support.

Medical fact sheet

Multiple sclerosis

Medical fact sheet - article

Symptoms of multiple sclerosis

Medical fact sheet - article

Fatigue and multiple sclerosis

Medical fact sheet - article

Treating multiple sclerosis

Medical fact sheet - article

Multiple sclerosis and vision problems

Medical fact sheet - article

Multiple Sclerosis Drugs

Medical fact sheet - article

Multiple sclerosis : Key figures and prevalence

Medical fact sheet - article

Living with multiple sclerosis

Medical fact sheet - article

Diagnosing multiple sclerosis

Medical fact sheet - article

Multiple Sclerosis: Research and New Treatments

Medical fact sheet - article

Treatments for Multiple Sclerosis

Medical fact sheet - article

Multiple sclerosis and cognitive problems

cwright17

11/09/2023 at 12:14

Good morning 😁

I've seen positive posts regarding copaxone, but it didn't fare well for me being on it. Was on it for 5 years, then tried on tysabri after I had new lesions on my spine (c3/c4) but I couldn't take more than the 1 dose because I'm JCV positive. So, back on copaxone I went for a few months before I had a status epilepticus event and was hospitalised for 27 days. I was given IV prednisolone, and I continued the copaxone injections until I got a call from my MS nurse telling me to stop my copaxone on X date, as my neuro had enough evidence to get me on ocrevus! It's a wonder drug! And now I'm looking at going on kesimpta later this year! Sure, I'll be doing self injections again, but at least it's only once monthly, apart from my starter doses, rather than 3 times a week 48 hours apart 😅

But, do what feels best in your heart and mind. You can always ask to change drugs if you don't feel its working enough 🫂 good luck ❤️

See the best comment

1
2
3
Go to

Multiple sclerosis Forum

Multiple sclerosis

Symptoms of multiple sclerosis

Fatigue and multiple sclerosis

Treating multiple sclerosis

Multiple sclerosis and vision problems

Multiple Sclerosis Drugs

Multiple sclerosis : Key figures and prevalence

Living with multiple sclerosis

Diagnosing multiple sclerosis

Multiple Sclerosis: Research and New Treatments

Treatments for Multiple Sclerosis

Multiple sclerosis and cognitive problems

Claiming benefits while working with MS

MS: Have you tried complementary herbal remedies to relieve symptoms?

Going downhill fast from PPMS

9 Tips for managing cognitive problems

✈️ Travelling with multiple sclerosis: tips and experiences to share?

MS diagnosis: How long did it take for you?

Bladder dysfunction in MS: How do you manage it?

Fatigue and multiple sclerosis: How does it affect your daily life?

Does MS affect your perception of time? Do your days feel longer or shorter? ⏳💭

MS: How do you manage bladder/bowel issues?

Stem cell therapy for MS: Have you tried it?

MS treatments and side effects: What helps you?

Have you tried natalizumab (Tysabri) for your MS?

Relapsing remitted but am completely disabled because of a stroke in July 2022

What type of MS do you have?

MS: How do you manage the emotional highs and lows?

Multiple Sclerosis - Disease-modifying drugs (DMDs)

MS: Fasting diet for weight loss

What is your MS story? Let's share!

Multiple Sclerosis - Do you also get dizziness or vertigo?

Multiple sclerosis Forum

Give your opinion

Articles to discover...

Medication fact sheets - patient opinions...