Patients Multiple sclerosis
Multiple Sclerosis - DMDs
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Hi all, Coming up to 2 years ago I was diagnosed with RRMS as I had gone colourblind in my left eye. At the same time I was diagnosed with Breast cancer. The MS took a back foot whilst I battled the cancer (all gone now 😊) .
Now I'm having my second relapse and the MRI has shown new lesions in my spine which is attributed to my tingling legs, feet and hands. As a result I've been recommended to start DMDs. I just have to chose which one.
Can any one here tell me how they faired with any of them?
Hello @Rhubarb! How are you feeling today?
Thank you so much for starting this discussion. Firstly, I want to commend your incredible strength in facing both RRMS and breast cancer at the same time and congratulate you on beating the latter. It's truly inspiring how you've overcome such challenges.
Regarding your current situation, it's important to note that different individuals can have varying responses to these medications, and what works for one person might not be the best fit for another. I trust you have consulted your healthcare provider first for professional advice tailored to your specific situation.
In any case, let me go ahead and tag a few members of our community that I feel might be able to help answer your question better:
@TomShillington @Nexabyqu @Elk217015 @Sdianew03 @jayane @kateheath @Chellechelle @Kanaboyo @Mrspotter @flowergirl @Narcisse @waggywoo1 @nazza91 @Luke3341 @Iannoh @Hayleybunny @Trayback @EireLiz @Sinead1 @anne2211 @cwright17 @SoniaNIN @rkeiza @shellmo4
Hello everyone! How are you?
Have you undergone treatment for MS with either Plegridy, Copaxone, or Tecfidera? How was your experience?
Thank you so much for your contribution, and have an amazing day!
Take care now,
Somya from the Carenity team
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Good morning 😁
I've seen positive posts regarding copaxone, but it didn't fare well for me being on it. Was on it for 5 years, then tried on tysabri after I had new lesions on my spine (c3/c4) but I couldn't take more than the 1 dose because I'm JCV positive. So, back on copaxone I went for a few months before I had a status epilepticus event and was hospitalised for 27 days. I was given IV prednisolone, and I continued the copaxone injections until I got a call from my MS nurse telling me to stop my copaxone on X date, as my neuro had enough evidence to get me on ocrevus! It's a wonder drug! And now I'm looking at going on kesimpta later this year! Sure, I'll be doing self injections again, but at least it's only once monthly, apart from my starter doses, rather than 3 times a week 48 hours apart 😅
But, do what feels best in your heart and mind. You can always ask to change drugs if you don't feel its working enough 🫂 good luck ❤️
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Charlotte Hargreaves-Wright (he's also double barrelled his name so he can be "Wright" half the time)
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@cwright17 I was on Copaxone for over 15 years before it stopped working. However when I did have a significant relapse I was told that I had to have Methylprednisolone - not just prednisolone as recent results at that time ( 2020) had indicated that it could be counter effective.
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