MS and the Coronavirus - How are you handling the pandemic?

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Hello dear members,

While the Coronavirus epidemic concerns many across the UK (and Carenity members too), I've created this discussion to allow you to talk specifically about the virus in the context of multiple sclerosis, as we all know that patients can be weakened by their treatments.

Have you received any special instructions from your doctor regarding your care? Are you going to limit your travel? Do you have any advice for others?

Take care,

Courtney

Beginning of the discussion - 20/03/2020

MS and the Coronavirus - How are you handling the pandemic?


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Any information regarding ms and taking gilyena as I have been on this treatment since October 

MS and the Coronavirus - How are you handling the pandemic?


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I only take Low Dose Naltrexone for my MS since 2014. I've been signed off from the Hospital since last year because I don't take any of their Drugs still. I was given permission to self  isolate from my job at a school this week. Mainly because I am in contact alot with the students and I could catch the virus. This isolation will be hard for me as I have a Daughter living not far away and 3 Grandsons, but can't physically see them . However we have Facetime at least!

MS and the Coronavirus - How are you handling the pandemic?


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I was diagnosed with  MS in 2001. When I was 30 years old I am due to turn 50 in January. My MS is progressing, I am very lucky, I have 2 children, an amazing husband, great  family and friend network and a part time job.  If anyone is feeling stressed, scared, isolated or uncertain about how you deal with our current challenges, sometimes a chat can help. Please get in touch. Vicki x

MS and the Coronavirus - How are you handling the pandemic?


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II'm a retired NHS speech and language therapist, so know little about medical practice, only how to be compliant. i've had MS for 36 years, worked for 12 years after my first symptom but thankfully have not worked since. I've never  been at a suitable age for treatment or been advised to have any for MS. For my symptoms since retiring I take modafinil whi GPsch keeps me awake all day and amytriptyline which keeps me asleep at night. I live with my spouse / carer who self isolates better than I do. We both receive PIP and he enjoys shopping on his very able legs. Overall I am lucky in every way and enjoy being at home and making a little money using my laptop. I recommend keeping away from the NHS as much as possible.. When you need help try to talk to GPs by phone, be well prepared with questions and know your own medical history.

MS and the Coronavirus - How are you handling the pandemic?


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@Vixen10000  Hi there Vicky, my name's Clare.  I'm 45 was diagnosed in 1998 at the ripe old age of 24 and my MS is also progressing and it has been confirmed by my neuro that it has got to Secondary Progressive stage, hardly surprised! lol  

I also have 2 children, well 16 and 18 yr old boys so young men! The Hubby buggered off 4 years ago but i do have 2 sons which are in training to do diy (not that the ex used to do it anyway), put the bins out and shopping so no love lost there.

I do have dark moments obviously but I do try to look on the bright side even if this coronavirus is freaking me out a bit! 

Anyway, that's enough, just thought I'd say hi and introduce myself.............take care and stay safe, Clare x

MS and the Coronavirus - How are you handling the pandemic?


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@Nathan76 @Desertflower @Vixen10000 @Jomarian @clarebear030574 Hello all. I've been self-isolating out of precaution  Have any of you received a message from the NHS? The MS Society has a comprehensive page on their site with lots of information and advice. I've been following that since I haven't heard anything yet and I haven't been able to get through to my GP. Stay safe everyone! xx

MS and the Coronavirus - How are you handling the pandemic?


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@ladymary I got a call yesterday. 12 weeks of isolation is it! How is everyone handling the isolation?

MS and the Coronavirus - How are you handling the pandemic?


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@Vihi everyone my husbxen10000 and abandoned me almost 4yrs ago. Have 1 daughter 3 grandchildren. Was 24yr old when i started with ms symptoms. Its been 39yrs i now have secondary ms. Met my new boyfriend 4 mths ago hes itallian. Hes brilliant about the ms. I self isolate. Scared to death of this dam virus. Hope your all doing well as expected. I live alone life can be daunting. So have to do everything alone. Enjoy the challenge now. Its surprising what you can do when your all alone. Cheers you guys 

MS and the Coronavirus - How are you handling the pandemic?


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Hi all I'm new to this forum, I have secondary progressive MS, with mobility issues due to my spasticity it my legs. The whole virus issue is a worry, but we carry on regardless.

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