Topic of the discussion
Posted on 31/03/2020 00:00
Since psoriasis is a chronic inflammatory disease, you are probably taking anti-inflammatory medications (corticosteroids, etc.), immunosuppressants (methotrexate) or biologics (Humira, Cosentyx, etc.). These treatments can weaken your immune defenses, however it is recommended not to stop or change them without the advice of your doctor!
Have you read the recommendations dedicated to patients with chronic conditions such as inflammatory diseases? Has your doctor warned you or reassured you about your treatments? Has he or she given you the procedure to follow in the event of coronavirus symptoms? Do you feel sufficiently informed as a patient?
How are you handling the social distancing and stay-at-home measures? Does this pose major difficulties for you in following your treatment, for your daily life with the disease? Feel free to share the difficulties you have to overcome, as well as ways to alleviate them as comments to this discussion!
If you haven't already seen, we've published a few articles that may be of some help and guidance to you:
Feel free to share your experiences, as well as any thoughts or questions you may have below!
Beginning of the discussion - 02/04/2020Coronavirus and psoriasis: Is my treatment putting me at risk? https://www.carenity.co.uk/forum/psoriasis/living-with-psoriasis/coronavirus-and-psoriasis-is-my-treatment-putting-me-at-risk-3141
Posted on 02/04/2020 11:35
@Courtney_J I've been worried since I'm on Humira injections. The whole point of TNF inhibitors is that they lower immune system response, so I'm afraid that it will make me more likely to catch COVID-19. I feel a little in the dark here, I've had nothing from my GP or anyone else. Is everyone else self-isolating?
Posted on 06/04/2020 17:36
Hi - I’m on Stelaria for palmar plantar - it is an immunosuppressant but hosp say I’m not on the higher risk bracket - I am a bit confused - does anyone know what the difference is?? Thanks
Posted on 14/04/2020 16:50
Hello @nothingelse and @Belfast1, thank you for commenting. Let me tag some members to see if they have any advice or can provide any clarity for you both:
Hello members, I hope you don't mind me tagging you! Have you had any information about your conditions or your medications vis à vis the coronavirus? Do you have any advice to share? How are you doing during this difficult time?
@Happychick46 @Clarity @HelenaCreaby @Janeywom @Tamara26 @Jillyb @Salsa79 @Amberl481 @Alan.byrne @Leannek22 @killoranm @Chillsy @Nicole79 @Hannfoley @SadieJane @Nikki76 @Leanne2013 @Oceanwesley
Posted on 14/04/2020 17:05
I am on Methotrexate and Xeljanz which both cause me to be immunosuppressed and according to the guidelines issued by the HSE this places me in the category of those who need to cocoon. You need to be extra careful and mind yourself. I was showing symptoms in early/mid March and my GP referred me for a test for Covid as I was in a high risk category along with my symptoms. Ultimately it came back negative thankfully. Your GP won't reach out to you generally speaking but if you have symptoms or concerns they will do a phone consult. I'm not sure if the criteria are the same in Belfast - from what you say @Belfast1 it wouldn't seem so and I don't know the procedures either for the NHS. Hope this helps x Stay safe and well all.
Posted on 14/04/2020 17:09
Hi I'm not bad myself at this time. I do try to pot around, just trying to keep busy. I do find my psoriasis arthritis has been playing up ABIT. Cause I'm used to going swimming. I was advised that I'm high risk so not taken any chance. But this washing and cleaning all the time has taken its toll on my skin. Constantly moisturing. As hard as it is, I just try to stay positive. And I'm on (methotrexate) so that I been informed is high risk
Posted on 14/04/2020 17:40
@HelenaCreaby thank you so much - I have since received a letter stating that I’m in the high risk bracket - but the hosp had said the drug stelaria unlike methotrexate didn’t put me there....I know it is all very confusing!!
take care - stay safe
Posted on 30/04/2020 14:20
@HelenaCreaby @Happychick46 @Belfast1 Hi everyone, I'm on methotrexate too, I thought about stopping my treatment at first but my doctor told me to continue. I've been self-isolating for several weeks since I got my letter also. Even if more and more people stay at home around me, it's still just as hard and frightening. I can't see my family and friends, go to the shops or just for a walk... I feel really lonely and anxious and I spend most of my time watching telly. I don't know what to do...
Posted on 30/04/2020 14:57
Posted on 25/05/2020 14:55
I know this is a bit late now, but I asked my GP at the start of all this about the steroids I'm on for my nail psoriasis and he ensured me that I (and the rest of you too if you're on them) would be fine as my dosage I'm on isn't enough to be seriously immunosuppressive.
Hope everyone is well. I've actually enjoyed a little bit of the lockdown, it gave me time to be with my thoughts and my wife and slow down life a bit. Not to say that I won't be glad when it's over, but it was a nice change of pace.
Take care everyone!