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Patients Breast cancer

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Topic of the discussion

Carenity Member
Posted on

Hi, I am new to the group. I was diagnosed with invasive lobular carcinoma on Nov 30. I am totally in shock. The consultant is so blunt & not approachable so feel unable to ask questions. Had an MRI this week, how long until I receive the results? Cannot get in to the GP until 15 Jan. Can somebody please relate?

Beginning of the discussion - 12/18/17

invasive lobular carcinoma
Carenity Member • Community manager
Posted on
Good advisor

Hi @Hidden username‍ ,

so sorry to hear about your diagnosis!

Hopefully you will get some feedback very soon. To help you with this, I suggest posting your story in another discussion group for breast cancer, which is more active: https://member.carenity.co.uk/forum/living-with-breast-cancer-76.

You can also check out this discussion on the type of breast cancer: https://member.carenity.co.uk/forum/living-with-breast-cancer/what-is-the-type-of-your-breast-cancer-1831. Here you can find members with the same time and approach them directly.

Hope this helps!

If you have any questions on how to use the site, feel free to contact me anytime.

Kind regards,

Margarita

invasive lobular carcinoma
1

Carenity Member
Posted on

Hi I had a full lymph nodes clearance on friday , felt ok over the weekend, feel very light headed and tiered today, arm numb which I expected, can sort of feel a weird feeling in the arm which I think must be the fluids trying to find some where to drain , hoping not to feel like this for long xx

invasive lobular carcinoma
1

Carenity Member
Posted on

@Bubbles01 hi... I felt like everything was done in a two week block?  Seemed forever then but now operation.. chemo... radiotherapy all done!!! Fingers crossed for April when I have my mamagram! Xx good luck 

invasive lobular carcinoma
Carenity Member
Posted on

Hi, I have had visits to the hospital & back for the last 3 weeks, am going again tomorrow to get the results of the MRI. I have managed to secure an appointment today with my GP who is much more approachable then the consultant. There is no discussions with the consultant, she is so abrupt. I want to know if I have choices? I know I am not having chemotherapy, but I will have 15 days of radiotherapy 6 weeks after the OP. I wish you well with your treatments. Thank you for replying xx

invasive lobular carcinoma
Carenity Member
Posted on

@Bubbles01 hi 

same as you diagnosis but lovely team ( always nice to get a hug ) .

everything has happened in short time frame , update 20/12/17 no spread & HER2 neg .today I have pre-op & see my breast care nurse also . Now listed for surgery next week mastectomy & lymph node clearance . So I have joined this forum to read what happens now ......... x

invasive lobular carcinoma
Carenity Member
Posted on

@Bubbles01 that's positive then (no chemo)... usually the norm 3wks radiotherapy you'll be fine, it's a doddle nothing to it, just a little soreness when it's finished. You'll be fine after it all. The operation is quick in & out in a day xx all the best

invasive lobular carcinoma
Carenity Member
Posted on

@carolc1 hi carol after your op... you will be recovering for a few weeks then you'll go back over the results.... because depending on spread to lympnodes then chemo , then radiotherapy will be offered. If nodes are clear maybe just radio.  My friend had mastectomy & didn't need any treatment at all ... lucky lol xx 

invasive lobular carcinoma
1

Carenity Member
Posted on

Hi, The mastectomy is booked for 4th Jan, Mri showed an area that had not shown on the MRI, the consultant said it is 10cm, does not think it has spread to lymh nodes. Will check when they do the OP. Thinking positive :)

invasive lobular carcinoma
Carenity Member
Posted on

Just seen this bubbles... how you doing x

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