Patients Multiple sclerosis
MS disability: Do you know your FS score?
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Hello all,
I hope you're doing well. Have you seen this older discussion? 
Have you heard of an EDSS score? Has your neurologist ever give you your score?
It is often said that the EDSS test focuses too much on walking, underestimates the importance of upper body function and completely ignores mood and mental health.
Do you feel like your score accurately represents how MS impacts your life?
@eddy23 @Bereke @kennie @boiyah66 @karen5 @elmcroft25 @Theawr @rubyrose69 @Bryan123 @MrsBBumble @Nealson @KarenTravers @Lee411 @lucy2000t2000 @Jackline @Lizgee @Lenny62 @liam361 @funkychicken2021
Feel free to share here!
Take care,
Courtney
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Courtney_J, Community Manager, Carenity UK
Gilda
Community managerGood advisor
The Kurtzke Expanded Disability Status Scale (EDSS) is a method of quantifying disability in multiple sclerosis. The scale has been developed by John F. Kurtzke.
The EDSS quantifies disability in eight Functional Systems (FS) and allows neurologists to assign a Functional System Score (FSS) in each of these.
Kurtzke defines functional systems as follows:
- pyramidal
- cerebellar
- brainstem
- sensory
- bowel and bladder
- visual
- cerebral
- other
Once the test is taken, then the results can tell us according to the scale, the level of disability. The results in general are as follows: EDSS steps (results) 1.0 to 4.5 refer to people with MS who are fully ambulatory. EDSS steps 5.0 to 9.5 are defined by the impairment to ambulation.
Has anyone here taken this test? How was your experience taking it? Do you recomend it for others?
Thanks for sharing your info :)
Best,
Gilda