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Patients Multiple sclerosis

7 answers

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Topic of the discussion

Carenity Member • Community manager
Posted on
Good advisor

Hello,

I propose each of you shares here the top 3 things that help you manage your disease. The things or people or actions without which you feel you couldn't cope.

Is it your treatment? Your physical activity? Your doctor? Your patient association's leader?

Any idea/experience is welcome!

Beginning of the discussion - 8/18/18

Top 3 things that help you manage your MS
1

Carenity Member
Posted on

Take stress out

Marijuana 

sleep

Top 3 things that help you manage your MS
Carenity Member • Community manager
Posted on

@BShields Sleep is always a fantastic way to rejuvenate yourself. I love drinking a cup of chamomile tea before going to bed to help me relax.

Top 3 things that help you manage your MS
1

Carenity Member
Posted on

Talking about how am feeling to an expert is often helpful. And being open to new ideas. 

Top 3 things that help you manage your MS
1

Carenity Member
Posted on

And my neuro physio is very helpful 

Top 3 things that help you manage your MS
Carenity Member • Community manager
Posted on

Yes, talking to others really helps. That's what Carenity is for too ;)

Do any other members have anything to add that helps them?

Top 3 things that help you manage your MS
1

Carenity Member
Posted on

I find it difficult to know when it’s time for me to stop and rest. Learning how to listen to your body is essential whether it is lower mood, slower thinking and movements, higher levels of anxiety and impatience.  These signs are often ignored by myself and end up becoming worse.

However top 3 things for me;

No caffeine 

moderate exercise 

good pain killers the day after beta interferon injection

Top 3 things that help you manage your MS
Carenity Member • Community manager
Posted on

@stutaylor Hello, thanks for sharing this, I hope it helps someone else :)

A bit of moderate exercise is always good for the body and mind.

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