Patients Multiple sclerosis
Topic of the discussion
Posted on 03/07/2017 23:49
I have just joined this site, how has everyone found it beneficial to them?
Thanks for your replies
Beginning of the discussion - 04/07/2017New to group https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/new-to-group-1849
Posted on 04/07/2017 21:40
Hi Redmarsail - welcome to Carenity and can only apologise for not seeing your post before now!! I have SPMS and unfortunately have not been very active, on Carenity recently, mainly due to my *******MS "acting up" again. The biggest benefit I found with joining Carenity is knowing that none of us are on our own - all of us who have MS (or any other medical condition) may experience different symptoms,problems etc but knowing there are so, so many others who can understand and empathise, due to them also having the same condition, is sooo very reassuring! There is also the opportunity to share/discuss our individual experiences, fears etc, which often help put what we are feeling, experiencing into a different perspective and is often extremely therapeutic and beneficial! Hope you are as well as possible and hopefully looking forward to "talking" to you in the future? Ann x
Posted on 10/07/2017 16:12
Hi Redmarsail my name is Karen and was diagnosed with MS in 1992. My main reason for joining apart from the obvious was for company. I'm single and don't see much of my family or my friend. MS for me is lonely (Sob sob) joking ☺. Right MS I need an electric wheelchair to get about now and don't drive.
As for hobbies, I love football and tennis (watching it just now). I also like politics (most folk find it a total turn off but not me, (I'm a member of the Labour Party) and try to be as active in that as my chair allows). Hope I've not bored you (really quite a happy soul). xx
Posted on 07/09/2017 17:18
I am new to Carenity & have joined in an effort to connect with sufferers of Tumefactive MS. A younger immediate family member was recently struck down with TMS & as the big sister, I just feel so frustrated by being unable to help very much so I am trying to find out what is available in the form of treatments, care & support. The symptoms are severe & to be able to connect with others in the same position, compare notes, frustrations, care ideas, possible benefits of different activities and then relay all of this to him, to encourage/ inspire/ reassure him is really all I can do.