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Treatments for multiple sclerosis

Avonex

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avatar stephanyJ

stephanyJ

14/06/2017 at 12:03

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avatar stephanyJ

stephanyJ

Last activity on 15/12/2022 at 21:19

Joined in 2017


19 comments posted | 13 in the Treatments for multiple sclerosis group


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Hi all, I'm new on this forum and really need some advice. My sister has secondary progressive ms and she's been prescribed Avonex. Could anyone tell me something more about the drug and if you've had a good or bad experience with it, or other treatments, in fact. thanks ! x

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avatar Yvette53

Yvette53

19/06/2017 at 14:18

avatar Yvette53

Yvette53

Last activity on 03/08/2024 at 18:18

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1 comment posted | 1 in the Treatments for multiple sclerosis group


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I have been on avonex for about 2yrs. Because I only inject every 2 weeks I don't run out of places to inject. I don't have any side effects either. I hope this helps


Avonex https://www.carenity.co.uk/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/avonex-1797 2017-06-19 14:18:55
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Unregistered member

03/09/2017 at 09:03

I am just deciding which DMT drug to take and have really swade to Avonex your information has helped me a bit more.


Avonex https://www.carenity.co.uk/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/avonex-1797 2017-09-03 09:03:39
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Unregistered member

04/09/2017 at 22:33

Thanks for your help.


Avonex https://www.carenity.co.uk/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/avonex-1797 2017-09-04 22:33:53

avatar Paula11

Paula11

05/09/2017 at 12:19

avatar Paula11

Paula11

Last activity on 05/05/2025 at 22:18

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3 comments posted | 3 in the Treatments for multiple sclerosis group


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Hi, i have been taking Mycophenolate tablets for the last 3 years as i nearly lost vision in my right eye, my vision has been saved. Has anyone been taken this medication? 


Avonex https://www.carenity.co.uk/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/avonex-1797 2017-09-05 12:19:00

avatar martin6528

martin6528

23/11/2017 at 13:54

avatar martin6528

martin6528

Last activity on 25/07/2021 at 11:35

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3 comments posted | 1 in the Treatments for multiple sclerosis group


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I was on Avonex for a year, then i started having side effects the main one was the day after i injected (Sunday) i had heavy flu/sickness symptoms then from Tues to Friday fine, then on Saturday i had panic attacks and bad tempered as i knew i had to inject the following day.  For this reason i came off it and went on to Tecfidera which is a pill in the morning and one at night and ive had no side effects.


Avonex https://www.carenity.co.uk/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/avonex-1797 2017-11-23 13:54:53
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Unregistered member

28/04/2018 at 09:52

I've been on avonex since Nov 2017.   The first two weeks were awful with side effects, the night time following my evening injection was horrendous.  I was aching all over with the worst flu like pains ever and constantly shaking.  I was also vomiting.  However this has eased and the worse I experience now is neck pain and sleeplessness.  Some weeks are better than others, I don' know why.  At times I wonder if it's all worth it.  


Avonex https://www.carenity.co.uk/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/avonex-1797 2018-04-28 09:52:36

avatar Margarita_k

Margarita_k

19/07/2018 at 17:08

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avatar Margarita_k

Margarita_k

Last activity on 07/10/2020 at 11:39

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1,195 comments posted | 88 in the Treatments for multiple sclerosis group

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Hi everyone,

@stephanyJ‍ , @yvette57 ‍ , @shayahstar‍ , @Paula11‍ , @martin6528‍ , @Wuddy66‍ 

don't forget that we now have a medications unit on Carenity (Give my opinion -> Medications) and that you can find the medications/treatments you've been taking, rate them and give your opinion so that other members could learn from you.

The more members comment on the medications, the more useful this unit will become.

Thank you in advance for your priceless contribution to our patient community.

Kind regards,

Margarita

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Avonex https://www.carenity.co.uk/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/avonex-1797 2018-07-19 17:08:43

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