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Multiple sclerosis

cwright17

11/09/2023 at 12:14

Good morning 😁

I've seen positive posts regarding copaxone, but it didn't fare well for me being on it. Was on it for 5 years, then tried on tysabri after I had new lesions on my spine (c3/c4) but I couldn't take more than the 1 dose because I'm JCV positive. So, back on copaxone I went for a few months before I had a status epilepticus event and was hospitalised for 27 days. I was given IV prednisolone, and I continued the copaxone injections until I got a call from my MS nurse telling me to stop my copaxone on X date, as my neuro had enough evidence to get me on ocrevus! It's a wonder drug! And now I'm looking at going on kesimpta later this year! Sure, I'll be doing self injections again, but at least it's only once monthly, apart from my starter doses, rather than 3 times a week 48 hours apart 😅

But, do what feels best in your heart and mind. You can always ask to change drugs if you don't feel its working enough 🫂 good luck ❤️

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cwright17

20/06/2022 at 12:24

@Mrspotter hi Mrspotter. I've come across this myself, but I have found that if I haven't done a bowel movement in a few days, where I would be concerned, I would take a movicol and try to move around more. The fact that you're passing gas looks to me like your bowels haven't fully been affected. I hope my bit of insight helps you,

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