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Living with multiple sclerosis

MS and bladder problems

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avatar LizziB

LizziB

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23/11/2022 at 22:20

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avatar LizziB

LizziB

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Last activity on 02/04/2024 at 00:46

Joined in 2022


280 comments posted | 6 in the Living with multiple sclerosis group

19 of their responses were helpful to members


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Hi everyone,

How are you?

One of the most common symptoms of MS is bladder problems. This can be in the form of either an overactive bladder with constant need for urination or that the bladder won't empty properly.

Do you have bladder control issues? What problems have you encountered? How does this affect your daily life? How do you manage?

I'll tag a few members to get the conversation going. Please share your experiences!

@Elk217015 @Sdianew03 @jayane @Chellechelle @kateheath @Kanaboyo @Mrspotter @flowergirl @Narcisse @waggywoo1 @waggy1 @Luke3341 @Iannoh @LindaMS @Franran3 @Byojaxs @niamhobroin2021 @alexab @AnneLH @Trumpmercy @Skiptry

Take care,

Lizzi



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avatar Sheridan

Sheridan

24/11/2022 at 10:04

avatar Sheridan

Sheridan

Last activity on 03/03/2025 at 20:09

Joined in 2017


1 comment posted | 1 in the Living with multiple sclerosis group


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I have to Urinate often, it’s so annoying and my Bladder doesn’t completely empty. It’s such a Pain


MS and bladder problems https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-bladder-problems-4885 2022-11-24 10:04:34

avatar Nicolah6869

Nicolah6869

24/11/2022 at 10:22

avatar Nicolah6869

Nicolah6869

Last activity on 05/11/2024 at 09:23

Joined in 2018


1 comment posted | 1 in the Living with multiple sclerosis group


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I seem to have both symptoms overactive and doesn't completely empty. I now take two types of medication. Solifenacin to calm down the overactive element and long term antibiotics to prevent recurrent UTI's. All my bladder function issues have now returned to a normal level albeit I do have to self catheter regularly.


MS and bladder problems https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-bladder-problems-4885 2022-11-24 10:22:09

avatar Sbw280874

Sbw280874

24/11/2022 at 12:00

avatar Sbw280874

Sbw280874

Last activity on 06/08/2024 at 09:52

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I have to self catheterize and have had a UTI for the last 4 wks. I am on my 3rd different set of anti biotics and i just cant clear it


MS and bladder problems https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-bladder-problems-4885 2022-11-24 12:00:02

avatar Sueharmonypuss

Sueharmonypuss

24/11/2022 at 14:37

avatar Sueharmonypuss

Sueharmonypuss

Last activity on 10/07/2024 at 22:42

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3 comments posted | 1 in the Living with multiple sclerosis group


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I've experienced bladder issues since about 1990 with both urgency and retention issues.

I 'eventually' started receiving botox injections in 2009, they're not pleasant, each treatment is 30 very sharp pinches inside the bladder and they HURT but it only takes a couple of minutes. Some patients need repeat treatments every 10-12months but I'm extremely fortunate in that I only need it doing every 17-19months but I saw a difference within 24hrs of my first treatment.

My consultant has said that it doesn't work for everyone but personally, if anyone tells me they're suffering in the ways I've suffered, I will always suggest they ask whether they can be assessed for botox treatment and to try it once to see whether it'll work for them.

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SueHarmonypuss


MS and bladder problems https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-bladder-problems-4885 2022-11-24 14:37:51

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avatar Luckie1

Luckie1

24/11/2022 at 15:36

avatar Luckie1

Luckie1

Last activity on 07/02/2025 at 19:30

Joined in 2018


5 comments posted | 2 in the Living with multiple sclerosis group


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@Sueharmonypuss wow ive never heard of that sue. i have bladder problems and can be very embarassing at times. i stopeed taking baclofen as found i couldnt control my bladder activity which was quite upsetting. seems better now but no toilets open during the pandemic wasnt easy!

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Helen Taylor


MS and bladder problems https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-bladder-problems-4885 2022-11-24 15:36:18

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