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MS diagnosis: How long did it take for you?
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ColinSalter
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ColinSalter
Last activity on 27/04/2025 at 18:27
Joined in 2021
13 comments posted | 7 in the Multiple sclerosis Forum
6 of their responses were helpful to members
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In 1992 I lost the site of my left eye for a month it came back after treatment from eye outpatient
I was getting tired from 2000
From 1996 I got a burning in my Left buttock
I was finally diagnosed in 2012 when I went numb below the waist
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Somya.P
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Somya.P
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Last activity on 29/04/2025 at 19:47
Joined in 2023
598 comments posted | 20 in the Multiple sclerosis Forum
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Hi everyone,
Hope you're doing well today!
Getting a diagnosis for multiple sclerosis (MS) can be a long and complex journey. It often involves multiple tests like MRIs, lumbar punctures, and neurological assessments, and for many, it's a time filled with uncertainty and frustration.
So we'd love to hear from you:
How long did it take to get your MS diagnosis?
What was the most difficult part of that period?
Were there any particular symptoms or turning points that finally led to answers?
@teebird @electricwizard @angel85 @Hoofah1 @Jomarian @Deanna @Bitch270 @sheilz @KarenS @Gillian23 @Kathandtony @chapmanjersey @mellymoo59 @JohnStedman @GalDriver @Juliette @traceymarie @halffull @zackie @kathy52 @Susanne66 @chelsea8 @Timemorem25 @Bethy1711 @Sunray7 @giggi61 @Charliecat @Kencomax @Shanka1974 @JohnLegge @PetrenaB @Mollytora @Lina679 @Fran123 @stevebriggs @nickynoo @MargaretP @FredaBurke @Hollissam1 @evlittle @AliSyn @Madmav @bigk @Rosalind75 @Tracey63 @Panda50 @Linzij @debbs54 @emc1cle @Debs50 @Debraf @Dannit @maisiemuppet @EmmaJfost @Desertflower @Eley24 @sbh2555 @helshel @Dina83 @Caroline72 @Tracey1971 @Maryma @Maryanna @goldiebones @SharonJ @Helen2128 @Heidif68 @Diva27 @Susiek @Sk8rGirl @David1970 @2212dianne0 @NMarshall @girlshirl @Charlie219 @Anita7263 @Harry1771 @FitzyDebs @Hattie24 @Rubytheareggienan @MarkClayt @Cazbarr57 @MSWarrior123 @Madmax1 @Mattyh75 @Lornafe191 @Katwatson72 @Paulmcintyre @Hoppity @Dlr1618 @Lindseypharoah @lucy2000t2000 @Lee411 @Rose1962 @Rachel5662 @volvof88 @ColinSalter @ehitschmann @TomShillington @StemCell07
Let's share our experiences to help others who might still be in that in-between phase. You're not alone.
Looking forward to reading your stories,
Somya from the Carenity Team🌼