- Home
- Forums
- Multiple sclerosis Forum
- Living with multiple sclerosis
- MS diagnosis: How long did it take for you?
Patients Multiple sclerosis
MS diagnosis: How long did it take for you?
- 24 views
- 0 support
- 3 comments
All comments
Troyeecloor4
Good advisor
Troyeecloor4
Last activity on 29/03/2026 at 12:54
Joined in 2021
19 comments posted | 10 in the Multiple sclerosis Forum
9 of their responses were helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Explorer
In 1992 I lost the site of my left eye for a month it came back after treatment from eye outpatient
I was getting tired from 2000
From 1996 I got a burning in my Left buttock
I was finally diagnosed in 2012 when I went numb below the waist
231Joofeyr
Good advisor
231Joofeyr
Last activity on 11/03/2026 at 17:15
Joined in 2017
22 comments posted | 21 in the Multiple sclerosis Forum
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Explorer
I've come to realise that I probably had symptoms for years before it got so bad my wife forced me to get it checked out. Always played the tough guy.
Peetoash6
Peetoash6
Last activity on 13/03/2026 at 12:28
Joined in 2022
12 comments posted | 6 in the Multiple sclerosis Forum
1 of their responses was helpful to members
Rewards
-
Contributor
-
Messenger
-
Explorer
YEARS. I was told so many times I'm imagining it. Turns out I'm not.
Give your opinion
Members are also commenting on...
Articles to discover...
17/09/2025 | Testimonial
MS: “It's deeply linked to stress, so it's important to take care of your emotions.”
Medication fact sheets - patient opinions...
Subscribe
You wish to be notified of new comments
Your subscription has been taken into account
1Deygoothoan
Good advisor
1Deygoothoan
Last activity on 13/09/2026 at 02:43
Joined in 2023
1,115 comments posted | 39 in the Multiple sclerosis Forum
110 of their responses were helpful to members
Rewards
Good Advisor
Contributor
Messenger
Explorer
Friend
Hi everyone,
Hope you're doing well today!
Getting a diagnosis for multiple sclerosis (MS) can be a long and complex journey. It often involves multiple tests like MRIs, lumbar punctures, and neurological assessments, and for many, it's a time filled with uncertainty and frustration.
So we'd love to hear from you:
How long did it take to get your MS diagnosis?
What was the most difficult part of that period?
Were there any particular symptoms or turning points that finally led to answers?
@Croyoo @Bliwey270 @Yeeplosack821 @Waicruweglen @Clooflouthaick2 @Gragey @Drooshey @Deynoush4 @Floacol8190 @Nobeetheeflush1421 @384Bliyooprat @Praythush7057 @Thaishayvoashear9686 @Theesteyveyn0078 @Yicocreyrait0 @Yushish7 @Roustouheecish529 @Gonoas858 @Crohooween8 @Hoafaynouthus1 @Neethaywoor531 @Peechaisheesh6504 @Fraidagoang4 @Hoothayhetrais @Flafegeepoang @Steagufril78 @Gloolaiblish852 @99Pleapoul @Shogleawool2 @Dothaido08 @Daigrayt96 @Gishaibaick642 @Froothoat06 @Gotocrus2 @Wustul51 @Bicloagrosh14 @Hidden username @Crafeebeyr @53Ploupriplayn @Frijes702 @Voapray152 @Poathoster19 @Hidden username @Peedrajaick57 @Raiwodot @Bliflot2 @Hidden username @Broupleyeagleys3521 @Thaydajair6 @Nimayl57 @Nopeatuck385 @Jaiplung15 @33Cleadootokoo @Waifeal729 @Shuwouding5 @Naypleybloan1388 @Shoacoaheeng50 @359Croudestoapeer @Koogreytri531 @Proutheching @412Disoocrout @Crijaiyoor14 @60Shoukeesa @Steypreatheang962 @Vaicloor612 @Leeshougoush160 @5613Baygleedroush @Jeestooyees1 @21Ploomeer @Jacricrait3115 @Ceafletheack644 @Atlantic65 @Runeywung97 @Treecrutri27 @Neafroawoabrong732 @Theyyoomeabroosh170 @Freacoabreadror2 @Feemoudreysh3720 @Traiclayprair6451 @Pibrafrush7 @Sootreproat75 @Meycut3632 @Dutroash2877 @Shoacosh7716 @Beyflot968 @Nooprang82 @Beaplochoung3223@Shoosteyshainet5653 @Beaplochoung3223 @Plaglis972 @Prayponos9871 @Goowis729 @0667Nourealeys @Trousteesh969 @6251Greebrobaidoos @Weyyadash061 @Dreysapack54 @Troyeecloor4 @Vabloyaick8636 @Wooblayjeng1 @Brachat407
Let's share our experiences to help others who might still be in that in-between phase. You're not alone.
Looking forward to reading your stories,
Somya from the Carenity Team🌼