Patients Multiple sclerosis
Anyone had a seizure
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Had MS for 10 years, 2 previous relapses.
Yesterday i had a seizure, lasting for around 2 mins. Drs think it to do with my MS and gave me anti convulsion tablets.
Anyone else had this?
I had 2 seizures when I'd only had MS for 4 or 5 years. I took tablets for it initially but I haven't taken any for years. I've had no more seizures either,
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@Juliette thanks for responding. I rang neurology up this morning and they said something about attending a seizure clinic but would get back to me about it. Im hoping i dont have any more, not a nice feeling!!
@Icklenuttychick Hi, I know, it's scary. As if we don't have enough to worry about already lol! It's a bit more common for someone with MS to have a seizure than a "normal" person hahaha. I can't say don't worry because you will worry. BUT, I had those two, stopped taking any tablets for them and it's over 30 years without one. Hope you can soon manage to think about nicer stuff! Stupid disease!!! xxx
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Yep, my first symptom were simple partial, temporal lobe seizures, back in late 2013. Got diagnosed with MS Sept 2014, with my first test being an evoked EEG showing one of my optic nerves not getting messages fast enough to my occipital lobe. Then, and MRI, and an lumbar puncture, all in early 2014. Late 2020, I had a generalised seizure one night. I only know about it because my other half told me in the morning about how he heard me calling from the bathroom, to then drop on the floor. I had 2 in one night in 2021, to the point where my OH had to call an ambulance, and I was in hospital for 27 days! Whilst I was in there, my MS nurse called me, telling me to stop taking copaxone, because I'm going on ocrevus. My post ictal state was horrible, I couldn't speak properly for a good few days, and doing a videocall with my mum scared her, because I looked like I had a stroke. I'm glad my OH remembers what I told him when we watched his best friend have a tonic-clonic one night: get them into recovery position, time how long the seizure is, be there when he comes to. That was before 2018, because we've moved out of the house we were in at that time 🤷♀️
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Charlotte Hargreaves-Wright (he's also double barrelled his name so he can be "Wright" half the time)
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