Patients Multiple sclerosis
Topic of the discussion
Posted on 30/07/2014 11:12
Are you experiencing any cognitive problems? Having trouble remembering where those car keys are or maybe finding it difficult to learn new things? And do you have a system to help you deal with your cognitive problems?
Good day to you all,
Beginning of the discussion - 31/07/2014Cognitive problems https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/cognitive-problems-71
Posted on 31/07/2014 21:04
I am pretty new to the condition and finding it hard to get used to all the new changes/symptoms I would be very grateful to hear any tips you or anyone else may have
Posted on 01/08/2014 13:12
Welcome to the forum! I am sure our members will help you. Being diagnosed with MS is very overwhelming, so your situation is understandable.
I highly recommend that you make a new discussion here in the group and post your question :) Since this discussion is about cognitive problems I don't think you will get as much feedback as you could. I think our members will notice your post more if you create a new discussion. All MS patients experience different symptoms, so if you describe some of the things you are struggling with, I am sure the members have plenty of advice for you. And me too ;)
All the best,
Posted on 29/10/2014 12:59
I have been diagnosed 12 years
Posted on 29/10/2014 13:09
I find cognitive problems my worst symptom
I just feel so stupid as i had to give up my job
I have started my 3rd medication for m.s.
I was put straight onto Rebif 44 and that worked great for 9 years
But then i noticed my leg draggingso my neuro suggested Copaxone,
I took that for 1yr but got so sick of the injection site reactions
I have been on Gilenya for over a year and im tolerating it well
My last m.r.i. showed no active lesions
Posted on 29/10/2014 15:27
lately I have been struggling with cognitive problems. was diagnosed with MS in 2008, but have never really had any problems until 6 months ago. I get a lot of fatigue and I feel that I have a hard time remembering many things. Also learning new things is not as easy. I feel like I am going crazy because I can't remember where I put things. I have always been good at these little things, so it is difficult for me to accept.
@Cablegirl1971 - I have also been on Gilenya for a bit over a year, currently waiting for my MRI check up. I was on Avonex before and had the same problem as you and copaxone - terrible side effects. For me Gilenya has really increased my quality of life! I have suffered a bit from blurry vision lately though, so I am also waiting for an eye exam. My doctor said it could be the Gilenya - I really hope not! Don't want to give up on it :)
Posted on 30/10/2014 20:25
Ah Danishgirl i really hope your eye exam goes ok,
My walking has defo improved
Posted on 13/05/2015 17:32
Hey everyone! Don't forget about this conversation! It has important advice and remember that sharing can help others to cope and prevent!
All the best,
Posted on 01/07/2015 00:58
i was d x in 1999 i've never had the sort of relapse that a lot of people get real pain (well aches and sometimes you know the electric shocks that make you scream) oh and just latly a bad back ect ,but maybe just my age 56 ?
oh cant walk except in house without crutches or my scooter
anyway I am fine ..........but...........
my wife doesnt really think I am coping so well ,I still yes look aftwr my 10 year old son ,but she is a bit concerned ,just because I do things like burn the saucepans and cook chicken in the microwave ,oh and a lot of othr things ,
it;s SORT OF CATCH 22 PROBLEM ,where I think everything is fine but mt wife doesnt ,i know i do have cognetive problems but .....i am honistly fine ,well i think i am ,do you believe me or my wife
please explain why you think that ,i try to be logical about things and the way i se it it's just a normal man thing to always get things wrong ,oh i'm also a horrible person as any fiends i make it is never long before i upset them
and my youngest daughter believes i was borne without an empathy gene ,any comments welcome ,i won't be offended
Posted on 01/07/2015 12:44
Keith i get you but i also understand your wife's point of view!!
Your obv very angry as a man you think you should be providing for your family
Maybe cool it a bit with your anger and do something fun with your kids
Trip to the Zoo?Local Park?The Beach?
Your kids will remember these days forever
Calm down,who cares if your house is dirty!!