MS and work: How do you manage?

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Patients Multiple sclerosis

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Posted on
Good advisor

Hello, since I have this condition it has been hard to keep a job. When I was first diagnosed I was in one, but I started taking days and eventualy my boss terminated my contract, because he said he couldn't have someone that wasn't there half of the time.

Now I found another job, it doesn't take much time or energy, but I need the money. The problem is that I am having trouble again with not showing some days...

Does anyone have advice?

Beginning of the discussion - 06/12/2015

MS and work: How do you manage?


Posted on

hello,i do really symphasize with you,i have been trying to keep my partime carers job,but had areal bad setback being in hospital with back problems,spondylathesis and sciaitica i couldn't move had a cahther and couldn't go ,needing suppostires for the other,i have now been off since august 30th,and i don't think i will make it back,sometimes best to listen to our bodies and not feel too bad,we tried that is the important thing to remember and time,give it time love boz x

MS and work: How do you manage?

• Community manager
Posted on
Good advisor

Hello,

Don't hesitate to share your experience and your opinion on this subject!

MS and work: How do you manage?

• Community manager
Posted on
Good advisor

This could be an interesting topic for discussion! How about sharing your own story?

How have your professional life changed since the diagnosis? Did your relationship with colleagues and your boss remain the same?

Have you ever applied for any benefits?

MS and work: How do you manage?


Posted on

I have been off work since July this year having been diagnosed with spms. My Union is trying to negotiate reasonable adjustments to my nursing role. I am coming close to the end of half pay and wondered if work can not sustain my role what benefits I may be able to get?

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