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Stopping MS treatment: What did you experience?
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Courtney_J
Community managerGood advisor
Courtney_J
Community manager
Last activity on 13/10/2022 at 16:47
Joined in 2020
1,279 comments posted | 58 in the Living with multiple sclerosis group
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@MSMaven Hello MSMaven, thank you for opening this discussion. Let me tag some other members who may be able to share their experiences with this:
Hello everyone, how are you doing?
Have you ever put your MS treatments on hold? What did you experience? Did you have any side effects or a relapse of your MS?
@BenGuy @Miss.MS @Rolley5 @VickiD @Emma123 @Emma1024 @shunt999 @madsheep71 @Zombieapplebaby @LindaBlacker @Daisybuster @Pleasance @Vallyvoo @Yank34 @1noddy @Susiek @Bern50 @Greeny
Feel free to share your experiences and advice here!
Take care,
Courtney
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Courtney_J, Community Manager, Carenity UK
Daisybuster
Good advisor
Daisybuster
Last activity on 09/04/2025 at 09:16
Joined in 2017
22 comments posted | 11 in the Living with multiple sclerosis group
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LindaBlacker
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LindaBlacker
Last activity on 18/12/2024 at 18:32
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180 comments posted | 71 in the Living with multiple sclerosis group
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Well I cant stop mine never been offered any medication apart from steroids. Suppose I have had ms 40yrs.
LindaBlacker
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LindaBlacker
Last activity on 18/12/2024 at 18:32
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180 comments posted | 71 in the Living with multiple sclerosis group
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I was on pre gablin a few yrs ago. I fell and split my head open so had to stop taking them. I stopped suddenly not thinking about the withdall effects. I was going mental couldnt rest for days. Now I understand a little what it's like to be a duggie going cold turkey no fun
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MSMaven
MSMaven
Last activity on 10/04/2023 at 18:57
Joined in 2020
13 comments posted | 11 in the Living with multiple sclerosis group
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Hi everyone,
I may have to temporarily stop taking my MS medicines so I can transition to a new medicine and I'm not sure what to expect.
Is there anyone who has stopped their MS treatment at some point for "X, Y or Z reasons"? How was it for you? Will I immediately have terrible side effects or go into relapse?
Thanks in advance for any comments!
xx