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  • Stopping MS treatment: What did you experience?
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Living with multiple sclerosis

Stopping MS treatment: What did you experience?

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avatar MSMaven

MSMaven

13/10/2020 at 09:31

avatar MSMaven

MSMaven

Last activity on 10/04/2023 at 18:57

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13 comments posted | 11 in the Living with multiple sclerosis group

1 of their responses was helpful to members


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Hi everyone,

I may have to temporarily stop taking my MS medicines so I can transition to a new medicine and I'm not sure what to expect. 

Is there anyone who has stopped their MS treatment at some point for "X, Y or Z reasons"? How was it for you? Will I immediately have terrible side effects or go into relapse?

Thanks in advance for any comments!

xx

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avatar Courtney_J

Courtney_J

Community manager
13/10/2020 at 10:13

Good advisor

avatar Courtney_J

Courtney_J

Community manager

Last activity on 13/10/2022 at 16:47

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1,279 comments posted | 58 in the Living with multiple sclerosis group

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@MSMaven Hello MSMaven, thank you for opening this discussion. Let me tag some other members who may be able to share their experiences with this:

Hello everyone, how are you doing? emoticon cute
Have you ever put your MS treatments on hold? What did you experience? Did you have any side effects or a relapse of your MS? 
@BenGuy‍ @Miss.MS‍ @Rolley5‍ @VickiD‍ @Emma123‍ @Emma1024‍ @shunt999‍ @madsheep71‍ @Zombieapplebaby‍ @LindaBlacker‍ @Daisybuster‍ @Pleasance‍ @Vallyvoo‍ @Yank34‍ @1noddy‍ @Susiek‍ @Bern50‍ @Greeny‍ 

Feel free to share your experiences and advice here!

Take care,
Courtney

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Courtney_J, Community Manager, Carenity UK


Stopping MS treatment: What did you experience? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/pausing-ms-treatment-3791 2020-10-13 10:13:22

avatar Daisybuster

Daisybuster

13/10/2020 at 10:23

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avatar Daisybuster

Daisybuster

Last activity on 09/04/2025 at 09:16

Joined in 2017


22 comments posted | 11 in the Living with multiple sclerosis group


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Morning, iv not stopped mine well started on injections couldn’t get on with them so neurologist put me on tablets, been ok with them.

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K.t


Stopping MS treatment: What did you experience? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/pausing-ms-treatment-3791 2020-10-13 10:23:53

avatar LindaBlacker

LindaBlacker

13/10/2020 at 11:41

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avatar LindaBlacker

LindaBlacker

Last activity on 18/12/2024 at 18:32

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180 comments posted | 71 in the Living with multiple sclerosis group

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Well I cant stop mine never been offered any medication apart from steroids. Suppose I have had ms 40yrs. 


Stopping MS treatment: What did you experience? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/pausing-ms-treatment-3791 2020-10-13 11:41:43

avatar LindaBlacker

LindaBlacker

19/11/2020 at 10:39

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avatar LindaBlacker

LindaBlacker

Last activity on 18/12/2024 at 18:32

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180 comments posted | 71 in the Living with multiple sclerosis group

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I was on pre gablin a few yrs ago. I fell and split my head open so had to stop taking them. I stopped suddenly not thinking about the withdall effects. I was going mental couldnt rest for days. Now I understand a little what it's like to be a duggie going cold turkey no fun


Stopping MS treatment: What did you experience? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/pausing-ms-treatment-3791 2020-11-19 10:39:36

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