Stopping MS treatment: What did you experience?

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MSMaven

13/10/2020 at 09:31

Hi everyone,

I may have to temporarily stop taking my MS medicines so I can transition to a new medicine and I'm not sure what to expect.

Is there anyone who has stopped their MS treatment at some point for "X, Y or Z reasons"? How was it for you? Will I immediately have terrible side effects or go into relapse?

Thanks in advance for any comments!

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Courtney_J

Community manager

13/10/2020 at 10:13

Good advisor

@MSMaven Hello MSMaven, thank you for opening this discussion. Let me tag some other members who may be able to share their experiences with this:

Hello everyone, how are you doing? emoticon cute
Have you ever put your MS treatments on hold? What did you experience? Did you have any side effects or a relapse of your MS?
@BenGuy‍ @Miss.MS‍ @Rolley5‍ @VickiD‍ @Emma123‍ @Emma1024‍ @shunt999‍ @madsheep71‍ @Zombieapplebaby‍ @LindaBlacker‍ @Daisybuster‍ @Pleasance‍ @Vallyvoo‍ @Yank34‍ @1noddy‍ @Susiek‍ @Bern50‍ @Greeny‍

Feel free to share your experiences and advice here!

Take care,
Courtney

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Courtney_J, Community Manager, Carenity UK

Stopping MS treatment: What did you experience? https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/pausing-ms-treatment-3791 2020-10-13 10:13:22

Daisybuster

13/10/2020 at 10:23

Good advisor

Morning, iv not stopped mine well started on injections couldn’t get on with them so neurologist put me on tablets, been ok with them.

See the signature

K.t

Stopping MS treatment: What did you experience? https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/pausing-ms-treatment-3791 2020-10-13 10:23:53

LindaBlacker

13/10/2020 at 11:41

Good advisor

Well I cant stop mine never been offered any medication apart from steroids. Suppose I have had ms 40yrs.

Stopping MS treatment: What did you experience? https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/pausing-ms-treatment-3791 2020-10-13 11:41:43

LindaBlacker

19/11/2020 at 10:39

Good advisor

I was on pre gablin a few yrs ago. I fell and split my head open so had to stop taking them. I stopped suddenly not thinking about the withdall effects. I was going mental couldnt rest for days. Now I understand a little what it's like to be a duggie going cold turkey no fun

Stopping MS treatment: What did you experience? https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/pausing-ms-treatment-3791 2020-11-19 10:39:36