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Patients Multiple sclerosis

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Posted on

I suffer in the heat (it feels like my brain melts and I cease to function) and often retreat into my bedroom, shut the door and turn on my air conditioning unit. I also have a cool vest and cool scarves etc for when I venture out. Oh, and I take ½ a teaspoon of bi-carbonate of soda in orange juice every morning as it's supposed to help heat tolerance.

How do you cope?

Beginning of the discussion - 19/06/2015

Summer heat

• Community manager
Posted on
Good advisor

Hello guys!

Don't forget about this conversation! Does someone has advice for GalDriver?

Remember that sharing helps you and others to cope and prevent.

All the best,

Gilda 

Summer heat


Posted on

I dread hot weather just because it tires me out and makes me clumsy, so bare feet as often as possible, it's my favourite footwear   Not possible at work though, I have to wear safety boots!! so I went part-time.

Summer heat


Posted on

I used to wear boots for work (was a tube train driver) and often drove home barefoot. My poor feet were screaming to be let out.

Summer heat


Posted on

Yay, a tube train driver, awesome. I loved being a truck driver, used to drive them barefoot if it was a distance job. Don't you miss working your cool job or was it a shite job??

Summer heat


Posted on

Yes I do miss it but as I now walk with crutches going down onto 640v of rails on occasions wouldn't have been a good idea. lol I'm also knackered 24/7 too, bloody MS fatigue.

Prior to that I was a driving instructor on cars, buses and class.2 lorries. I miss them too...but..hey ho. I've only just given up the PCV & LGV licences and that felt really really weird. I still drive a car but it's automatic now. I bit the bullet and got a motability car at the end of last year and my compensation to 'crockdom' was that I got a hybrid 4x4 ;-) :-D I love it....life's full of little compensations, eh?!

Oooh, driving barefoot, love it! Enjoy.x

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