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  • Have you tried Ocrelizumab (Ocrevus)?
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Treatments for multiple sclerosis

Have you tried Ocrelizumab (Ocrevus)?

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avatar nameless

nameless

15/07/2020 at 16:55

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avatar nameless

nameless

Last activity on 08/06/2023 at 11:50

Joined in 2017


19 comments posted | 18 in the Treatments for multiple sclerosis group


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Hello all,
I've been doing some reading about possible treatments and I read that ocrelizumab can now be given to people with RRMS and I've heard it really does wonders. Has anyone on here been on it? Has it worked for you? Did you have any side effects? I'm curently taking Avonex and it's really not working. I'm due for an appointment soon and I'm afraid I'll have more lesions, so I'm thinking of asking my doctor about Ocrevus. Any advice is appreciated!

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avatar Courtney_J

Courtney_J

Community manager
15/07/2020 at 18:48

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avatar Courtney_J

Courtney_J

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Last activity on 13/10/2022 at 16:47

Joined in 2020


1,279 comments posted | 58 in the Treatments for multiple sclerosis group

11 of their responses were helpful to members


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@nameless Hello nameless, thank you for opening this discussion. Let me tag some members who may have some feedback for you on Ocrevus.

Hello members, how are you today? Have you been on Ocrevus for your MS? What do you think of it? Has it helped you with your MS? Did you have any side effects? Feel free to share here!
@Sandy12‍ @Claire1974‍ @Cherylmoore‍ @Davbod1870‍ @Carol50‍ @Granmarshall‍ @Barbershop19‍ @NicLiv‍ @ANGIE.‍ @Kimskin‍ @Jowilliamson82‍ @Querky‍ @MSWarrior123‍ @Bonnyvonny64‍ @Amy1977‍ @JuWall76‍ @Vwelwood‍ 

Take care,
Courtney

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Courtney_J, Community Manager, Carenity UK


Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.co.uk/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/have-you-tried-ocrelizumab-ocrevus-3587 2020-07-15 18:48:59

avatar MSWarrior123

MSWarrior123

15/07/2020 at 20:32

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avatar MSWarrior123

MSWarrior123

Last activity on 10/06/2025 at 21:45

Joined in 2020


10 comments posted | 9 in the Treatments for multiple sclerosis group


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Hi. I was put on tysabri from the onslaught.... after 2 lots of steroids and a plasma exchange, as my rrms was so aggressive and unforgiving.... but ive now been on it literally a year and, touch wood, it's working & my 1st check up mri showed no further lesions or features of PML....so if you find something that works stick with it aslong as you can xx

Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.co.uk/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/have-you-tried-ocrelizumab-ocrevus-3587 2020-07-15 20:32:55

avatar Julie52

Julie52

04/08/2020 at 12:17

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avatar Julie52

Julie52

Last activity on 02/03/2023 at 06:19

Joined in 2018


12 comments posted | 4 in the Treatments for multiple sclerosis group


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I’m a little confused because I have a telephone appt on Weds I’ve had ms now for nearly 30yrs and had beta interferon, avonex and 2yrs trial on ya blood interferons. (Intravenous). My ms atm is starting to worsen I suppose I’m blessed to have had 30yrs being physically able but not anymore. I have spms so was wondering about asking about the Ocrevus, but there in lies another problem I have two slipped discs in my back and have to have an op on my back, I’m worried about it because it’s on the spine and would it interfere with my ms? So many questions sorry 😐 but any advice appreciated. Btw shout out to anyone who attends the Royal hallamshire Hospital I have a new consultant and his names Dr Lindert? Anybody know of him? And what he’s like? Thanks 😊 blessings to you all 

 

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Julie Owen


Have you tried Ocrelizumab (Ocrevus)? https://www.carenity.co.uk/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/have-you-tried-ocrelizumab-ocrevus-3587 2020-08-04 12:17:48

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