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Which MS treatment side effect has been the hardest for you to cope with?
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LindaBlacker
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LindaBlacker
Last activity on 19/02/2026 at 18:58
Joined in 2020
181 comments posted | 72 in the Multiple sclerosis Forum
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The steroids put weight on hard to shift. Alas I've had MS 45YRS. NOW IVE BEEN DIAGNOSED WITH FIBROMYALGIA. THE AGONY IS RELENTLESS. WAITING TO SEE A SURGEON END OF MARCH
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Somya.P
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Somya.P
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Last activity on 19/02/2026 at 19:16
Joined in 2023
933 comments posted | 26 in the Multiple sclerosis Forum
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Hi everyone, hope today is a gentle day for you.
Medications for multiple sclerosis (MS) are essential for slowing disease progression and managing symptoms. But some treatments can come with side effects that are difficult to live with. Whether physical or emotional, these effects can shape our treatment decisions and our day-to-day quality of life.
Sharing what you’ve been through can help others feel more prepared and less alone.
@shellmo4 @chewchew @Polart @jerrycoleman @diane2409 @Yank34 @arunfc @greecetogo @bethen @onealec10 @Dizzer @chapmanjersey @Katie @Callie @Aci1984 @DoloresMawhinney @Danni1008 @MicheleR @Kerryjb @Sweetyx @Hannah_05 @esdoyle @jaynedebra @Zlg2070 @noelle1 @Alanamarie @Tiny67 @Ladyisis71 @Sam1968 @mazzii @Vic1982 @SuSaBa @rose1981 @Stevenikki @JamesMartinFan @Charlee73 @Herkimer-diamond @harpingmad @Beaglebum @PetrenaB @rainbow79 @Ampols @stevebriggs @Smudge12 @Shkoda @MzzBee @GailH01 @Jacklines @Walshya @Dawnb70 @Peppermintangie @Kk1995 @Hardeepb @MSRoxy @Shelah @Dina83 @Sheridan @Daisybuster @MummyD @jmagnoux @gilday74 @Bella1986 @Maryanna @BadgerCowell @Sproule @Linda80 @Julie92 @Sharonfeakes @Lisahodgkins @Diva27 @Dizzywizz @PriscillaWilda @Doitforkyle @Trickynicky @2212dianne0 @Salsybar46 @Charlie219 @Greeny @LindaBlacker @Ollie11 @thembrough @Wheezy81 @Michelle166 @Alipux @BeatriceHann @Meggymoo123 @SossieJ @Faye1512 @Mollymoo25 @Kazziejax @Richard @Carragher11 @Lindseypharoah @Leicester-City-Fan @billyjon @Caz1979 @revdonahue @shirleyglvins @Kihfvbfdg
Your story might offer real comfort and clarity to someone just starting out on their MS treatment journey.
Warm wishes,
Somya from the Carenity team 🌼