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  • What is spacticity in MS patients?
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Research and useful tips - Multiple Sclerosis

What is spacticity in MS patients?

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avatar Margarita_k

Margarita_k

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19/07/2017 at 16:30

Good advisor

avatar Margarita_k

Margarita_k

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Last activity on 07/10/2020 at 11:39

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1,195 comments posted | 88 in the Research and useful tips - Multiple Sclerosis group

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Spasticity is one of the most common MS symptoms, occuring in 60% to 90% MS cases. About 1 in 5  people reported that spasticity and spasms frequently affected their activities and one in eight described their symptoms as severe. But most people will only experience occasional symptoms.

Spasticity refers to feelings of stiffness and a wide range of involuntary muscle spasms (sustained muscle contractions or sudden movements). Spasticity may be as mild as the feeling of tightness of muscles or may be so severe as to produce painful, uncontrollable spasms of extremities, usually of the legs. Spasticity may also produce feelings of pain or tightness in and around joints, and can cause low back pain. Although spasticity can occur in any limb, it is much more common in the legs.

In flexor spasticity, mostly involving the hamstrings (muscles on the back of the upper leg), and hip flexors (muscles at the top of the upper thigh), the hips and knees are bent and difficult to straighten.

In extensor spasticity, involving the quadriceps and adductors (muscles on the front and inside of the upper leg), the hips and knees remain straight with the legs very close together or crossed over at the ankles.

Spasticity may be aggravated by sudden movements or position changes, extremes of temperature, humidity or infections, and can even be triggered by tight clothing.

What Causes Spasticity?

Spasticity happens because of an imbalance in the electrical signals coming from the brain and spinal cord, often when multiple sclerosis has damaged the nerves there. This unevenness makes your muscles contract on their own and makes them tense.

What is the difference between spasticity and spasms?

People with spasticity describe their muscles as feeling stiff, heavy and difficult to move. When spasticity is severe it can be very difficult to bend a limb at all.

A spasm is a sudden involuntary tightening or contraction of a muscle.

Any muscle can be affected but leg spasms and spasticity affecting the arms, legs or the trunk and back are most common.

Sources: webmd.com, mstrust.org.uk, nationalmssociety.org.

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Have you experienced this symptom? How did you cope? Did you get enought explanations from your doctor about spasticity?

 

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avatar Bootzy

Bootzy

25/07/2017 at 10:33

avatar Bootzy

Bootzy

Last activity on 25/07/2017 at 10:30

Joined in 2016


1 comment posted | 1 in the Research and useful tips - Multiple Sclerosis group


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Hi there, I'm still trying to cope with both spasticity and spasms. It often occurs out of the blue and is a very scary episode

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Bootzy


What is spacticity in MS patients? https://www.carenity.co.uk/forum/other-discussions/my-library-multiple-sclerosis/what-is-spacticity-for-ms-patients-1882 2017-07-25 10:33:12

avatar kathy52

kathy52

25/07/2017 at 11:11

avatar kathy52

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Last activity on 09/10/2024 at 17:24

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4 comments posted | 2 in the Research and useful tips - Multiple Sclerosis group


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Hi, I'm not sure if I get spasticity or spasms or both, so here goes- I get pain in my lower back, hips and legs, in my legs I get a 'cramp'  feeling which is painful and can take ages to go - I do have spondylosis in my lower back so maybe that's the pain? The one that scares me is when I go to bed I I have continuous spasms in my face, my jaw locks, my tongue gets pressed against the roof of my mouth and my whole body locks up and I cannot move at all - i have to wait for it to release as I cannot call out to my husband, if he comes into the bedroom to get me up I can only grunt at him so he knows I cannot move, he then has to take hold of my arms first, moves them about to release them so that I can massage my face to relax the muscles, he then manipulates my legs until I can move them myself. Can anyone give me some advice to  be able to deal with this please as my face problems started 2 years ago - I know I have a lesion at c3 and I have been told this the cause, I just want to know if there is anything that could help, I have tried different pillows a new mattress and ways to lie down to sleep. Many thanks in advance for any suggestions.

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Kathy:)


What is spacticity in MS patients? https://www.carenity.co.uk/forum/other-discussions/my-library-multiple-sclerosis/what-is-spacticity-for-ms-patients-1882 2017-07-25 11:11:57

avatar KeithDB

KeithDB

25/07/2017 at 12:30

avatar KeithDB

KeithDB

Last activity on 09/12/2024 at 10:59

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2 comments posted | 2 in the Research and useful tips - Multiple Sclerosis group


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Hi, This is the first time I have commented on this site. I was diagnosed back in September 2006 (optic neuritis at work forced me to see a specialist) and apart from the usual problems of tiredness, weakness etc I have been fine. However, as it has been a while since I have been seen by anyone, I am seeing my GP this week, specifically because my wife has recently banned me from carrying my grand-daughter any distance. I have accidentally fallen awkwardly twice, once into the road. I’m hoping there may be some new medication available….

I’m unsure if this is spasticity per se but on some occasions , and only when I get up in the morning, my legs tend to tremor or shake at the knees. It goes off fairly quickly. Has anyone else experienced this?


What is spacticity in MS patients? https://www.carenity.co.uk/forum/other-discussions/my-library-multiple-sclerosis/what-is-spacticity-for-ms-patients-1882 2017-07-25 12:30:08
avatar exit

Unregistered member

08/08/2017 at 15:43

I suffer with spasticity in my lower right leg which has progressively got worse - I cannot bend my leg at the knee and ankle - I have tried various different types of medication but nothing helps to alleviate the stiffness - now going for a course of physiotherapy. Has anyone else had experience of this and found something that works for them?


What is spacticity in MS patients? https://www.carenity.co.uk/forum/other-discussions/my-library-multiple-sclerosis/what-is-spacticity-for-ms-patients-1882 2017-08-08 15:43:29

avatar Margarita_k

Margarita_k

Community manager
Edited on 07/09/2017 at 12:22

Good advisor

avatar Margarita_k

Margarita_k

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Last activity on 07/10/2020 at 11:39

Joined in 2016


1,195 comments posted | 88 in the Research and useful tips - Multiple Sclerosis group

2 of their responses were helpful to members


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Hi everyone, if you have something to share, a piece of advice, you are welcome to comment!

Thank you in advance for your contribution.

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Community Manager


What is spacticity in MS patients? https://www.carenity.co.uk/forum/other-discussions/my-library-multiple-sclerosis/what-is-spacticity-for-ms-patients-1882 2017-08-30 18:18:09
avatar exit

Unregistered member

06/09/2017 at 12:54

Hi all, the biggest problem i am having at the moment is the lost of the use of my legs and have gone down or have to go down so many time's in the last week's, but all in all life is good 


What is spacticity in MS patients? https://www.carenity.co.uk/forum/other-discussions/my-library-multiple-sclerosis/what-is-spacticity-for-ms-patients-1882 2017-09-06 12:54:54

avatar harpingmad

harpingmad

07/09/2017 at 10:56

avatar harpingmad

harpingmad

Last activity on 04/03/2025 at 08:29

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4 comments posted | 1 in the Research and useful tips - Multiple Sclerosis group


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Like Kathy52, I get spasms (or spasticity - I too don't really know the difference) in my shin bones which goes down along the top of my foot and is excruiciatingly painful but eventually goes away with massage, though I can't do this as I'm waiting for a hip replacement next month and cannot reach them.  My neurologist says I'm putting too much hope into my total hip replacement operation as she seems to think I will still have the same problem, but I'm thinking positively.

I also get the same sensation but this time it runs diagonally accross from either of my inner knees to the top of the thigh muscle.  This is so painful that it has made me pass out a couple of times and if I don't do that I get a cold sweat.  This can happen suddenly when trying to sit down or in the middle of the night when I'm asleep.  

I also fall over randomly.  

I have no lesions on my spine to date, though am due my annual MRI full scan next week and this problem only started about 10 months ago.  

I have been waiting for a hip replacement for two years now and have been fobbed off for various reasons and also because they lost my x-rays and then my notes at the hospital.  I was due to have it this month, and am on the fast-track list as they have finally confirmed that my hip is "as bad as it could get", but it has now been rescheduled for 5 October.  I have not been able to lie down to sleep for four months now and cannot believe that they have made me wait till I'm in this situation and then still make me wait 14 weeks for the operation.  Also, given that MS patients suffer pain and muscle problems already, you would think we would be given some priority.  I am self-employed as a professional harpist and music teacher and it has cost me thousands in lost income from weddings etc this summer.

Apart from that I love life (when I'm not having a pain episode!).


What is spacticity in MS patients? https://www.carenity.co.uk/forum/other-discussions/my-library-multiple-sclerosis/what-is-spacticity-for-ms-patients-1882 2017-09-07 10:56:10

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