MS and the Coronavirus - How are you handling the pandemic?

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Courtney_J

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13/03/2020 at 12:36

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Courtney_J

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Hello dear members,

While the Coronavirus epidemic concerns many across the UK (and Carenity members too), I've created this discussion to allow you to talk specifically about the virus in the context of cancer, as we all know that patients can be weakened by their treatments.

Have you had any special instructions from your doctor regarding your care? Are you going to limit your travel? Do you have any advice for others?

Take care,

Courtney

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LindaBlacker

07/04/2020 at 11:16

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LindaBlacker

Last activity on 18/12/2024 at 18:32

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Lovely to hear such inspiring stories. We are a tough bunch. Not much choice really. Wish I didnt live alone. Life can be so hard with secondary ms

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-04-07 11:16:44

LindaBlacker

07/04/2020 at 11:18

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LindaBlacker

Last activity on 18/12/2024 at 18:32

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It's difficult travelling alone. As when I did go out before this virus. My legs would be very stiff when I reached my destination.

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-04-07 11:18:51

Kelly17

07/04/2020 at 11:26

Kelly17

Last activity on 21/01/2021 at 09:38

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Hi, I'm Kelly and I have rrms. I haven't received a government letter about isolating but I'm doing so anyway. Does anyone know where I stand regarding work and getting any sick pay etc?

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-04-07 11:26:47

Paula18

07/04/2020 at 22:35

Paula18

Last activity on 27/03/2023 at 19:59

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Hi I haven't had a letter either I have ms & fybro too I do have a flu jab every year but really don't no if I have to could anyone let me no thanks Paula

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-04-07 22:35:48

Kelly17

08/04/2020 at 09:44

Kelly17

Last activity on 21/01/2021 at 09:38

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I spoke to my GP surgery, MS nurse and my boss yesterday. The gps and ms nurses can't write a note as it has to be the one from the government. My boss spoke to her accountant and can't pay me sick pay. She is, however, trying to have me furloughed. This will be amazing if I can be. I'll keep you updated.

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-04-08 09:44:53

Daisybuster

08/04/2020 at 10:42

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Daisybuster

Last activity on 09/04/2025 at 09:16

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22 comments posted | 11 in the Living with multiple sclerosis group

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@LindaBlacker hi Linda same here the more I walk the worse my legs get.

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K.t

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-04-08 10:42:59

LindaBlacker

08/04/2020 at 16:35

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LindaBlacker

Last activity on 18/12/2024 at 18:32

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Hi lovely to meet you. Yes it's so frustrating. There are drugs out there that help with walking. I've been refused. I'd love to know why. Only ever had pre gablin or steroids. Other people seem to be on a variety of drugs. Once your secondary your forgotten

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-04-08 16:35:28

LindaBlacker

08/04/2020 at 16:39

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LindaBlacker

Last activity on 18/12/2024 at 18:32

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I also fell down stairs many yrs ago breaking my wrist. Damaging my spine. I now have three prolapse discs as well as secondary ms.

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-04-08 16:39:21

Michelleywoo

09/04/2020 at 09:41

Michelleywoo

Last activity on 29/05/2020 at 19:25

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@LindaBlacker

@LindaBlackerPlease get in touch with your local council they will have support groups and information on getting you help. Stay safe and I hope you get the help you need. X

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-04-09 09:41:44

Daisybuster

09/04/2020 at 10:32

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Daisybuster

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@LindaBlacker hi Linda I take a DMD TECARDA do you take any .

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K.t

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2020-04-09 10:32:11

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