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- MS and the Coronavirus - How are you handling the pandemic?
MS and the Coronavirus - How are you handling the pandemic?
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LindaBlacker
Good advisor
Lovely to hear such inspiring stories. We are a tough bunch. Not much choice really. Wish I didnt live alone. Life can be so hard with secondary ms
LindaBlacker
Good advisor
It's difficult travelling alone. As when I did go out before this virus. My legs would be very stiff when I reached my destination.
Kelly17
Hi, I'm Kelly and I have rrms. I haven't received a government letter about isolating but I'm doing so anyway. Does anyone know where I stand regarding work and getting any sick pay etc?
Paula18
Hi I haven't had a letter either I have ms & fybro too I do have a flu jab every year but really don't no if I have to could anyone let me no thanks Paula
Kelly17
I spoke to my GP surgery, MS nurse and my boss yesterday. The gps and ms nurses can't write a note as it has to be the one from the government. My boss spoke to her accountant and can't pay me sick pay. She is, however, trying to have me furloughed. This will be amazing if I can be. I'll keep you updated.
Daisybuster
Good advisor
@LindaBlacker hi Linda same here the more I walk the worse my legs get.
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K.t
LindaBlacker
Good advisor
Hi lovely to meet you. Yes it's so frustrating. There are drugs out there that help with walking. I've been refused. I'd love to know why. Only ever had pre gablin or steroids. Other people seem to be on a variety of drugs. Once your secondary your forgotten
LindaBlacker
Good advisor
I also fell down stairs many yrs ago breaking my wrist. Damaging my spine. I now have three prolapse discs as well as secondary ms.
Michelleywoo
@LindaBlacker
@LindaBlackerPlease get in touch with your local council they will have support groups and information on getting you help. Stay safe and I hope you get the help you need. X
Daisybuster
Good advisor
@LindaBlacker hi Linda I take a DMD TECARDA do you take any .
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K.t
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Courtney_J
Community managerGood advisor
Hello dear members,
While the Coronavirus epidemic concerns many across the UK (and Carenity members too), I've created this discussion to allow you to talk specifically about the virus in the context of cancer, as we all know that patients can be weakened by their treatments.
Have you had any special instructions from your doctor regarding your care? Are you going to limit your travel? Do you have any advice for others?
Take care,
Courtney