Patients Multiple sclerosis
Topic of the discussion
Posted on 21/05/2018 18:03
This discussion will be dedicated to MS patients who use wheelchair full-time or occasionally. Here you can share your experience and tips, as well as encouragement and support for those who have just started using wheelchairs.
You are welcome to discuss different issues related to wheelchair use:
- at what moment did you decide to use a wheelchair, at what age?
- did you go directly to full time usage or started with part-time?
- what kind of wheelchair did you opt for - manual or motorised?
- psychological aspect of starting to use a wheelchair: how did you cope?
I think it would be helpful for some members to be able to share their thoughts and to have a place to ask questions.
Thank you all in advance for your contribution!
Beginning of the discussion - 29/05/2018MS: wheelchair use https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/ms-wheelchair-use-2345
Posted on 29/05/2018 11:50
I use a wheelchair sometimes.Mostly when I have to go for a hospital appointment as the car parks are to far away from where I need to be and I have trouble walking more than few steps.When I need to go shopping I usually use a mobility scooter
Posted on 06/06/2018 17:41
Hi @Tinker2bells thank you for sharing your experience!
Posted on 09/07/2018 12:51
My husband (who is the MS sufferer) started using a manual wheelchair approx 10 years ago when we went on holiday, as he had problems walking, he was pleasantly surprised at how he was treated and how much more he got to do or see. He then progressed onto a power chair which was even better. Unfortunately he suffered a stroke in 2014, which effected his right side so he’s no longer able to use the power chair! So it’s back to me pushing the manual.
Posted on 19/07/2018 16:58
Hi @Tinker2bells and @chellby
thank you for sharing!
Do you have any trouble with access to certain places or do you find most of them well-adapted for wheelchairs?
Posted on 06/08/2018 12:38
I am awaiting an MS nurse to come and look at what wheelchair I need. I believe it will be motorised as I haven’t any use of my dominant hand.
i have been using a rollator and find is more and more difficult
Posted on 27/09/2018 17:31
I was diagnosed in 2016 but suffered with fatigue and left leg heaviness and pain for about 10 years before this. Initially I bought a walking stick more for balance but soon felt like I needed something else otherwise I would miss out. I use a mobility scooter on holiday as it's the only way I can get around to see the place I am in. Had some issues in mainland Spain recently as they wouldn't take it on organised excursions which I prefer as I know I will get there and back without having to work it out myself.
At home I use a manual wheelchair if I go anywhere at weekends with my husband and children otherwise I wouldn't be able to go anywhere. I don't usually need any support during the week as I am at work and can walk a short distance as I know I will be able to sit down the majority of the day.
Posted on 27/09/2018 18:15
@Linzij The aids really help to make traveling much more straight forward.
Have other members had trouble using their mobility scooters abroad?
Posted on 06/10/2018 17:29
I’ve just been seen by an MS Specialist Nurse and she has told me to apply to the MS Society for a grant towards a mobility scooter. Does anyone know how to go about this please?
Posted on 07/10/2018 10:34
My sister who also has MS has got a grant from the MS society.I think she just gave them a call and explained what she wanted and they sent the forms out.
I think she got roughly £375 from the MS society and the same from her local one.She also rang mobility to see if the could help with the AP on a mobility car They did but I don't know how much she got.(We don't talk very much)
Give it a go they can only say no but they might also say yes.