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Patients Multiple sclerosis

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Topic of the discussion

Carenity Member • Community manager
Posted on
Good advisor

This discussion will be dedicated to MS patients who use wheelchair full-time or occasionally. Here you can share your experience and tips, as well as encouragement and support for those who have just started using wheelchairs.

You are welcome to discuss different issues related to wheelchair use:

  • at what moment did you decide to use a wheelchair, at what age?
  • did you go directly to full time usage or started with part-time?
  • what kind of wheelchair did you opt for - manual or motorised?
  • psychological aspect of starting to use a wheelchair: how did you cope?

I think it would be helpful for some members to be able to share their thoughts and to have a place to ask questions.

Thank you all in advance for your contribution!

Beginning of the discussion - 5/29/18

MS: wheelchair use
Carenity Member
Posted on

I use a wheelchair sometimes.Mostly when I have to go for a hospital appointment as the car parks are to far away from where I need to be and I have trouble walking more than few steps.When I need to go shopping I usually use a mobility scooter

MS: wheelchair use
Carenity Member • Community manager
Posted on
Good advisor

Hi @Hidden username‍ thank you for sharing your experience!

MS: wheelchair use
Carenity Member
Posted on

My husband (who is the MS sufferer) started using a manual wheelchair approx 10 years ago when we went on holiday, as he had problems walking, he was pleasantly surprised at how he was treated and how much more he got to do or see. He then progressed onto a power chair which was even better. Unfortunately he suffered a stroke in 2014, which effected his right side so he’s no longer able to use the power chair! So it’s back to me pushing the manual. 

MS: wheelchair use
Carenity Member • Community manager
Posted on
Good advisor

Hi @Tinker2bells‍ rel="nofollow"and rel="nofollow"@Hidden username‍ 

thank you for sharing!

Do you have any trouble with access to certain places or do you find most of them well-adapted for wheelchairs?

MS: wheelchair use
Carenity Member
Posted on

I am awaiting an MS nurse to come and look at what wheelchair I need. I believe it will be motorised as I haven’t any use of my dominant hand.

i have been using a rollator and find is more and more difficult 

MS: wheelchair use
1

Carenity Member
Posted on

I was diagnosed in 2016 but suffered with fatigue and left leg heaviness and pain for about 10 years before this. Initially I bought a walking stick more for balance but soon felt like I needed something else otherwise I would miss out. I use a mobility scooter on holiday as it's the only way I can get around to see the place I am in. Had some issues in mainland Spain recently as they wouldn't take it on organised excursions which I prefer as I know I will get there and back without having to work it out myself.

At home I use a manual wheelchair if I go anywhere at weekends with my husband and children otherwise I wouldn't be able to go anywhere. I don't usually need any support during the week as I am at work and can walk a short distance as I know I will be able to sit down the majority of the day.

MS: wheelchair use
Carenity Member • Community manager
Posted on

@Linzij The aids really help to make traveling much more straight forward.

Have other members had trouble using their mobility scooters abroad?

MS: wheelchair use
1

Carenity Member
Posted on

I’ve just been seen by an MS Specialist Nurse and she has told me to apply to the MS Society for a grant towards a mobility scooter. Does anyone know how to go about this please?

MS: wheelchair use
1

Carenity Member
Posted on

My sister who also has MS has got a grant from the MS society.I think she just gave them a call and explained what she wanted and they sent the forms out.

I think she got roughly £375 from the MS society and the same from her local one.She also rang mobility to see if the could help with the AP on a mobility car They did but I don't know how much she got.(We don't talk very much)

Give it a go they can only say no but they might also say yes.

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