Patients Multiple sclerosis
Topic of the discussion
Posted on 27/10/2020 17:47
Unsure of how things will go
Sometimes I think it's better to talk to fellow Ms'ers about things will it be possible to get advice on incontinence of the bowels
This is so embarrassing , I get the urge/feeling I want to open my bowels and then I can't control them
Any help please????
Appreciated VERY much ThanksXx p
Beginning of the discussion - 28/10/2020Bowel urgency, incontinence and MS: Have you experienced this? https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/neurology-telephone-consultation-appointment-t-3825
Posted on 28/10/2020 15:53
@JayneMason Hello JayneMason, thank you for opening this discussion and sharing what you've been dealing with. How did your appointment go?
Hello members, how are you today? Have you ever experienced bowel urgency and/or incontinence in parallel with your MS? How did you handle it? Do you know if it was caused by MS itself or the treatments?
@Bern50 @Zombieapplebaby @Hezza21 @Meggie333 @Oliviac09 @182614 @Diva360 @DavidMacRae @vonnywonkie @Carol50 @Granmarshall @Barbershop19 @NicLiv @ANGIE. @Essben @Scottydog
Feel free to share your thoughts and experiences here, we're all here to help and support one another!
Posted on 29/10/2020 15:49
@JayneMason Yes I've started having some bowel issues as well. My specialist said it was the medicines I'm taking. Maybe it's that for you as well? How was your appointment?
Posted on 30/11/2020 13:46
I once had an accident wished I could vanish felt so embarrassed. Now I take an imodium before I leave my home. Better to be safe than sorry.
Posted on 30/11/2020 14:09
These stories are very familiar i too don't get much notice when i need to go i have increased my fluid intake which has helped but my carers now know the routine and are good because sometimes i get very frustrated when i want to go but can't i try not to focus on my bowels as i want to be in control not them (sometimes it's hard) keep well everybody 🌈
Posted on 02/12/2020 14:27
It's difficult focusing on my bowel when it's totally unpredictable. If I take medication to slow down my bowel when I go out. My bowel is sluggish for days. I'd love to hear your views on this matter. It's difficult being in a new relationship with this problem. Even though my fiancee has irritable bowel. We end up laughing about the situation as theres nothing we can do
Posted on 07/12/2020 16:21
I've had a couple of embarrassing moments. Part of my plan is always to know where my emergency loo is. I had a minor panic when I had to board a light aircraft for part of a particular journey - no loos there!
Pretty sure it is MS related.
Posted on 08/12/2020 11:11
Hello everyone, thank you for creating and participating in this discussion!
@JayneMason How are you feeling? Were you able to speak with your neurologist? Were they able to provide any clarity on this for you?
Posted on 22/12/2020 15:19
I have secondary ms yes incontinence is part and parcel of ms. I've had an accident myself luckily for me I got home just in time. Merry xmas happy 2021
Posted on 04/01/2021 13:16
Well hello everyone happy new year. I find ms unpredictable. Alas it's like most parts of my life. I take the ups with the downs quite well. Having had ms forty years helps. To me ms is normal. I've had ms more of my life than not. Hopefully this vaccine wont be too long. Weve enough to worry about. I'm a fighter now it works for me. No point getting down. Take care God Bless you all