Patients Multiple sclerosis
Topic of the discussion
Posted on 28/07/2017 16:06
Hi, hope you all are doing good out there.
I have a question about my sister's MS: she claims to have pain and tingling in her legs at night, which makes it difficult for her to sleep. She wonders if it is one of MS symptoms and if there are others who experience the same thing.
So if anybody suffers the same, and if it is normal for MS, please let me know so that I could tell her not to worry.
Beginning of the discussion - 01/08/2017Pain at night https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/pain-at-night-1902
Posted on 01/08/2017 20:54
I certainly get pain and tingling at night and while I'm no expert, I do believe it's the MS. If she's worried though, it's best to talk to her doctor or MS nurse to find out for sure, and if it's a problem there are medicines that help. I'm on Baclofen and that enables me to sleep.
There is a lot of literature and on-line information about MS so reading up on it might help too.
All the very best to your sister..
Posted on 28/08/2017 23:19
Yes I have suffered with stiffness in my legs and feet now for over a year.It is one of the symptoms related to MS.The muscles tighten but don't always contract,thus leading to pain.Also the nerves are affected in MS, so again this is one of the side effects
Posted on 23/11/2017 11:18
Yes I get a lot of pain, tingling and burning sensation in my arms and torso that has at times preventing me from sleeping. My MS nurse suggested gabapentin. I have commenced this drug and await to see if this resolves or improves this discomfort, will keep you posted.
Posted on 15/01/2018 15:44
Hi yes I get lots of MS nerve pain: burning, stinging, gnawing pain. It use to only be a problem at night and amitriptyline use to help. Unfortunately I now get it throughout the day too. I take gabapentin, amitriptyline and co-Codamol and CBD. However, I really don’t think they are working as I’m still in daily pain but some days worse than others. It is very debilitating and each day us a struggle. I try to do some yoga/stretching as the muscles get so tight. I hope your sister can get some medication to relieve her pain.