Patients Multiple sclerosis
Topic of the discussion
Posted on 14/12/2020 15:01
Having an optic neuritis relapse in my right eye, pissed off to say the least, had one 9 years ago cant recall how long it took to come back to normal
Any info appreciated
Beginning of the discussion - 15/12/2020MS relapse and optic neuritis https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/relapse-3917
Posted on 15/12/2020 09:40
Hello Jerry, thank you for opening this discussion. Let me tag some other members who can perhaps share with you.
Good morning everyone, how are you doing on this Tuesday morning? Have you ever experienced optic neuritis (inflammation of the optic nerve that can cause blurred vision up to complete loss of sight) as part of an MS relapse? If so, how long did it last? Were you prescribed anything for it, such as a steroid or other treatment?
@sirtaki @Katniss @Tinaaholmes33 @Scottydog @Cazbarr57 @JackieTurner @AdeleCB @Sqeakie11 @MarkClayt @Loobyloo @Leesa71 @ednalittle @nowimhere39 @MSfamily @Blackjack63 @annconway75 @Ashleen @Aj2406
Feel free to share any advice or experiences here!
Posted on 16/01/2021 13:20
Anyone have any experience with weakness in leg , having that now as well , how long did it last for and does it go back to the way it was ie full strength afterwards, any info appreciated
Posted on 17/02/2021 11:17
@jerry coleman I have neuritis too with my relapses every couple of years, it's awful, isn't it? Thank goodness it's usually only in one eye, but it's painful and it messes up colours and causes blind spots. Very irritating. For me they usually go away after a few weeks when the relapse calms down.
I have overall muscle weakness, my neurologist had me see a physiotherapist to work on some exercises I can do at home to strengthen them. I try to stay active as well to help.
Posted on 01/03/2021 17:54
Hi I have permanent Optic Neuritis. I used to have it on and off for quite a few years when I was in relapsing remitting. But now unfortunately for me it’s permanent now because I’m Secondary Progressive. Have to have my eyes tested every 12 months and every year sadly my eyesight is getting worse. 🥲❤️ Love to you all
Posted on 02/03/2021 01:53
Hi, After 19 years with MS Im currently experiencing my first dose of ON complete with the joys of first-time- steroids.
My concerns are around my job being glued to a computer screen for 7.5 - 8 hours a day and how long I should be off work before I should go back. Last week when it was diagnosed I was on annual leave and when I spoke to neurologist on friday she said ' at least another week off' but thats pretty vague. I know I cant work at that intensity right now but when the discomfort starts to pale and the distortion caused by one eye starts to ease is that long enough to return to work OR should I wait until my eyesight is reliably 'normal'. I dont want to jeopardy any chance of a full recovery by going back to work to soon.
Anyone been in this position and can advise???