Patients Multiple sclerosis
Topic of the discussion
Posted on 14/09/2017 15:06
Hi everyone, hope you are doing good.
In this discussion I would like to invite you to exchange your opinions on MS flares: what is a flare for you?
What are the symptoms that help you recognize a flare? How long does it last? How do you treat it?
Is there anything you do to prevent a flare-up?
Thank you in advance for sharing your stories with each other!
Beginning of the discussion - 19/09/2017What is a MS flare for you? https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/what-is-a-flare-for-you-1951
Posted on 19/09/2017 12:22
Hi, for me they are awful, and usually last several days. When I had my first flares I didn't know they could last that long, though I know now they can last even longer.. I don't feel myself, very tired and weak, my legs feel numb, I can't sleep, etc.
How does anyone else feel whenever they have a flare?
Posted on 19/09/2017 22:45
Hiya, I was only diagnosed a month ago so MS is so new to me. My consultant thinks I may have had MS for about 10 years un-diagnosed. Just been on a course of steroids and now feel worse & in more pain than I did before.
Because I have been in pain etc for so many years, I had to ask my MS nurse when will I know when I have a flare but she couldn't really answer me & just said "I will"
Will I, any ideas? Thanks
Posted on 30/11/2017 14:21
Thank you for sharing!
I invite other members to join in the conversation and let us know what you think.
Posted on 10/08/2020 19:42
I don't often enough have the time/energy to interact as much as I'd like , hence have only just now become aware of this forum! Personally recognising/formally diagnosed with MS 35 yrs after it began, more likely have SPMS due to not having any "remissions" since that time. My daily/nightly symptoms include diplopia, poor co-ordination, painful spasticity, balance issues, pins and needles/decreased sensation (in right hand /foot), brain fog, fatigue, urinary urgency, MS hugs and with increasing age, every task, thought process etc is literally taking myself longer and longer to complete (and often unable to until the following day). Unfortunately as time goes by, experiencing much more stiffness when laying in bed + waking up as well as much more frequent "flares", lasting between a few weeks and a few months and may involve my already present symptoms becoming much worse +/or the odd "new" symptom but being a 69 yr old retired Registered Nurse, simply keep titrating (adjusting) my meds and activities according to my abilities at any given time. I'm sure MS flares like MS itself is as unique as every human being is and the beauty of internet resources like Carenity, enable us all to share and support each other. Sending everyone who reads this, every iota of hope, faith and positivity x
Posted on 11/08/2020 10:01
@Yank34 Hello Yank34, thank you for your comment and for sharing your experience with us. How do you handle your flares? How were your flares in lockdown?
@Miss.MS @Rolley5 @VickiD @Emma123 @Emma1024 @shunt999 @madsheep71 @Zombieapplebaby @Tilly68 @Bern50 @Meggie333 @DavidMacRae @182614 @Diva360 @Charlie12345 @Harps10 @Jemgavlaa @thembrough
What do you think? What is a flare for you? Did you notice any changes to your flares or your MS in lockdown? How do you handle your flares?