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  • Bowel urgency, incontinence and MS: Have you experienced this?
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Living with multiple sclerosis

Bowel urgency, incontinence and MS: Have you experienced this?

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avatar JayneMason

JayneMason

27/10/2020 at 17:47

avatar JayneMason

JayneMason

Last activity on 28/01/2023 at 18:55

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1 comment posted | 1 in the Living with multiple sclerosis group


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Unsure  of how  things will go

Sometimes I think  it's  better  to talk to  fellow  Ms'ers about  things will  it be possible to get advice on incontinence  of the bowels

This is so embarrassing , I get the urge/feeling  I want to open my bowels and then I  can't  control them 

Any help please????

Appreciated  VERY  much ThanksXx p

 

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avatar Courtney_J

Courtney_J

Community manager
28/10/2020 at 15:53

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avatar Courtney_J

Courtney_J

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Last activity on 13/10/2022 at 16:47

Joined in 2020


1,279 comments posted | 58 in the Living with multiple sclerosis group

11 of their responses were helpful to members


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@JayneMason Hello JayneMason, thank you for opening this discussion and sharing what you've been dealing with. How did your appointment go?

Hello members, how are you today? Have you ever experienced bowel urgency and/or incontinence in parallel with your MS? How did you handle it? Do you know if it was caused by MS itself or the treatments?
@Bern50‍ @Zombieapplebaby‍ @Hezza21‍ @Meggie333‍ @Oliviac09‍ @182614‍ @Diva360‍ @DavidMacRae‍ @vonnywonkie‍ @Carol50‍ @Granmarshall‍ @Barbershop19‍ @NicLiv‍ @ANGIE.‍ @Essben‍ @Scottydog‍ 

Feel free to share your thoughts and experiences here, we're all here to help and support one another!

Take care,
Courtney

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Courtney_J, Community Manager, Carenity UK


Bowel urgency, incontinence and MS: Have you experienced this? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/neurology-telephone-consultation-appointment-t-3825 2020-10-28 15:53:46

avatar Miss.MS

Miss.MS

29/10/2020 at 15:49

avatar Miss.MS

Miss.MS

Last activity on 29/10/2020 at 15:41

Joined in 2020


6 comments posted | 6 in the Living with multiple sclerosis group


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@JayneMason Yes I've started having some bowel issues as well. My specialist said it was the medicines I'm taking. Maybe it's that for you as well? How was your appointment?


Bowel urgency, incontinence and MS: Have you experienced this? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/neurology-telephone-consultation-appointment-t-3825 2020-10-29 15:49:20

avatar LindaBlacker

LindaBlacker

30/11/2020 at 13:46

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avatar LindaBlacker

LindaBlacker

Last activity on 18/12/2024 at 18:32

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180 comments posted | 71 in the Living with multiple sclerosis group

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I once had an accident wished I could vanish felt so embarrassed. Now I take an imodium before I leave my home. Better to be safe than sorry.


Bowel urgency, incontinence and MS: Have you experienced this? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/neurology-telephone-consultation-appointment-t-3825 2020-11-30 13:46:19

avatar Susiek

Susiek

30/11/2020 at 14:09

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avatar Susiek

Susiek

Last activity on 10/02/2025 at 08:31

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18 comments posted | 14 in the Living with multiple sclerosis group


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These stories are very familiar i too don't get much notice when i need to go i have increased my fluid intake which has helped but my carers now know the routine and are good because sometimes i get very frustrated when i want to go but can't i try not to focus on my bowels as i want to be in control not them (sometimes it's hard) keep well everybody 🌈


Bowel urgency, incontinence and MS: Have you experienced this? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/neurology-telephone-consultation-appointment-t-3825 2020-11-30 14:09:43

avatar LindaBlacker

LindaBlacker

02/12/2020 at 14:27

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avatar LindaBlacker

LindaBlacker

Last activity on 18/12/2024 at 18:32

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180 comments posted | 71 in the Living with multiple sclerosis group

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It's difficult focusing on my bowel when it's totally unpredictable. If I take medication to slow down my bowel when I go out. My bowel is sluggish for days. I'd love to hear your views on this matter. It's difficult being in a new relationship with this problem. Even though my fiancee has irritable bowel. We end up laughing about the situation as theres nothing we can do


Bowel urgency, incontinence and MS: Have you experienced this? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/neurology-telephone-consultation-appointment-t-3825 2020-12-02 14:27:14

avatar KeithDB

KeithDB

07/12/2020 at 16:21

avatar KeithDB

KeithDB

Last activity on 09/12/2024 at 10:59

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2 comments posted | 2 in the Living with multiple sclerosis group


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I've had a couple of embarrassing moments. Part of my plan is always to know where my emergency loo is. I had a minor panic when I had to board a light aircraft for part of a particular journey - no loos there!

Pretty sure it is MS related.


Bowel urgency, incontinence and MS: Have you experienced this? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/neurology-telephone-consultation-appointment-t-3825 2020-12-07 16:21:34

avatar Courtney_J

Courtney_J

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08/12/2020 at 11:11

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avatar Courtney_J

Courtney_J

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Last activity on 13/10/2022 at 16:47

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1,279 comments posted | 58 in the Living with multiple sclerosis group

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Hello everyone, thank you for creating and participating in this discussion! emoticon cute

@JayneMason‍ How are you feeling? Were you able to speak with your neurologist? Were they able to provide any clarity on this for you? 

Take care,
Courtney

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Courtney_J, Community Manager, Carenity UK


Bowel urgency, incontinence and MS: Have you experienced this? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/neurology-telephone-consultation-appointment-t-3825 2020-12-08 11:11:06

avatar LindaBlacker

LindaBlacker

22/12/2020 at 15:19

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avatar LindaBlacker

LindaBlacker

Last activity on 18/12/2024 at 18:32

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180 comments posted | 71 in the Living with multiple sclerosis group

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I have secondary ms yes incontinence is part and parcel of ms. I've had an accident myself luckily for me I got home just in time. Merry xmas happy 2021


Bowel urgency, incontinence and MS: Have you experienced this? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/neurology-telephone-consultation-appointment-t-3825 2020-12-22 15:19:51

avatar LindaBlacker

LindaBlacker

04/01/2021 at 13:16

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avatar LindaBlacker

LindaBlacker

Last activity on 18/12/2024 at 18:32

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180 comments posted | 71 in the Living with multiple sclerosis group

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Well hello everyone happy new year. I find ms unpredictable. Alas it's like most parts of my life. I take the ups with the downs quite well. Having had ms forty years helps. To me ms is normal. I've had ms more of my life than not. Hopefully this vaccine wont be too long. Weve enough to worry about. I'm a fighter now it works for me. No point getting down. Take care God Bless you all


Bowel urgency, incontinence and MS: Have you experienced this? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/neurology-telephone-consultation-appointment-t-3825 2021-01-04 13:16:44

avatar LindaBlacker

LindaBlacker

06/01/2021 at 18:40

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avatar LindaBlacker

LindaBlacker

Last activity on 18/12/2024 at 18:32

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I bought a key for most toilets I can use when the loos are closed feel safer as long as I can locate the loos before I set off.


Bowel urgency, incontinence and MS: Have you experienced this? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/neurology-telephone-consultation-appointment-t-3825 2021-01-06 18:40:01
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