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Living with multiple sclerosis

What type of MS do you have?

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avatar Margarita_k

Margarita_k

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09/02/2017 at 16:27

Good advisor

avatar Margarita_k

Margarita_k

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Last activity on 07/10/2020 at 11:39

Joined in 2016


1,195 comments posted | 88 in the Living with multiple sclerosis group

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There are three different types of MS:

1. Relapsing remitting MS - RRMS

2. Primary profressive MS - PPMS

3. Secondary progressive MS - SPMS

What type is your MS? How did you find out about your type? What tests did you have to do to determine it?

Don't hesitate to share and get to know other people suffering with exactly the same condition as you!

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avatar Clare11

Clare11

01/07/2017 at 20:18

avatar Clare11

Clare11

Last activity on 29/05/2020 at 13:40

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1 comment posted | 1 in the Living with multiple sclerosis group


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I've been told I now have SPMS after 15 years of slow progressive decline, when initially told it was sensory benign!


What type of MS do you have? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/what-is-the-type-of-your-ms-1589 2017-07-01 20:18:48

avatar Debbieb7812

Debbieb7812

03/07/2017 at 15:21

avatar Debbieb7812

Debbieb7812

Last activity on 02/01/2019 at 21:27

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I have rrms


What type of MS do you have? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/what-is-the-type-of-your-ms-1589 2017-07-03 15:21:49
avatar exit

Unregistered member

04/07/2017 at 07:36

 I have spms, diagnosed 3 years ago my balance is getting worse than it has ever been. 

Falling 2/3 times a week at the moment.

Jamielee1916@gmail.com

Makes me wonder what is next.


What type of MS do you have? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/what-is-the-type-of-your-ms-1589 2017-07-04 07:36:42
avatar exit

Unregistered member

04/07/2017 at 10:15

@jamie

Know the feeling Jamie, have just had to give mine up


What type of MS do you have? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/what-is-the-type-of-your-ms-1589 2017-07-04 10:15:45
avatar exit

Unregistered member

04/07/2017 at 10:38

Thanks for your message Ian I've had MS for 17 years now and not walked for about a year,but I can stand for about a 90 seconds at the moment.

But for most of the time I'm in a wheelchair.

What do you mean " give mine up" driving?

I'm suprised that I'm still not fed up yet,but I do know it will only get worse now.

The clock is ticking faster now!


What type of MS do you have? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/what-is-the-type-of-your-ms-1589 2017-07-04 10:38:01

avatar Bubble74

Bubble74

23/11/2017 at 22:10

avatar Bubble74

Bubble74

Last activity on 14/12/2018 at 20:36

Joined in 2016


1 comment posted | 1 in the Living with multiple sclerosis group


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@Michelle47 I also have severe headaches/migraines for up to 5 days which don’t seem to go with drugs all of them time and then only taking the edge of.  May not be MS related but my gut tells me they are.  I’ve found that cutting diary out has helped, and avoiding too much sugar and definitely no aspartame.  Hope they get better for you! 


What type of MS do you have? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/what-is-the-type-of-your-ms-1589 2017-11-23 22:10:11

avatar Michelle47

Michelle47

23/11/2017 at 22:44

avatar Michelle47

Michelle47

Last activity on 13/04/2021 at 00:18

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3 comments posted | 3 in the Living with multiple sclerosis group


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Thank you 

have been really bad this week having a steroid drip for 3 days tomorrow be interesting to c if this helps yes i have tried cutting out diary and gluten it does make a difference, i feel diet really makes a difference hard to find a variety off food which dont contain some off these, i found a lady on you tube who controls her ms with diet her name is Pam bartha very interesting. 


What type of MS do you have? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/what-is-the-type-of-your-ms-1589 2017-11-23 22:44:06

avatar Michelle47

Michelle47

23/11/2017 at 22:58

avatar Michelle47

Michelle47

Last activity on 13/04/2021 at 00:18

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3 comments posted | 3 in the Living with multiple sclerosis group


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@Michelle47 

Thankyou 

i have tried cutting out diary n gluten yes it makes a difference hard to find a variety off foods on this diet, I'm having to have steroid infusion at the min my main symptom is headache be interesting to c does the headache disappear, i found an interesting ladies story on you tube how she controls her ms symptoms totally through diet her name is Pam Bartha, 


What type of MS do you have? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/what-is-the-type-of-your-ms-1589 2017-11-23 22:58:11
avatar exit

Unregistered member

04/01/2018 at 04:34

I was told I have sensory benign ms then that it wasn't ms at all so I don't know where I am at but been ongoing for 30 years now. 


What type of MS do you have? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/what-is-the-type-of-your-ms-1589 2018-01-04 04:34:29

avatar jacxs71

jacxs71

13/01/2018 at 00:21

avatar jacxs71

jacxs71

Last activity on 10/08/2022 at 15:45

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1 comment posted | 1 in the Living with multiple sclerosis group


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Hi guys,  im new to this site.i was diagnosed RRMS in 2014.  Just wanted to pick your brains!! I was told ive just had spinal relapse in Oct last year, had MRI 2 weeks ago and they have said no new lesions. I have been struggling with walking as right leg is weak with horrific spasms and now same in right arm. I have a tremor in left leg. Im soooo confused to what is going on, havent got a follow up app till 17th March. I feel so fed up. Feel like I'm imagining all these symptoms. 

Can there be decline with no lesions????

Jackie.


What type of MS do you have? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/what-is-the-type-of-your-ms-1589 2018-01-13 00:21:32
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