Patients Multiple sclerosis
Topic of the discussion
Posted on 05/06/2017 19:10
hi I know it maybe hard to give your opinion as every one is different, however looking for some support here.
On Friday I began with a wandering eye, and I have had confirmation of active inflammation affecting the eye.
I have never had trouble with my eyes before I've had 3 days of iv steroids which I finished today, how long do you think I can expect to be like this, when should things start to improve as I finding it difficult with only one working eye. As I said I know it will be difficult to say as everyone is different. Seen as I've had steroids from day 1 of the flare should I see some quicker improvement?
Beginning of the discussion - 07/06/2017Flare of symptoms- eye trouble y o https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/flare-of-symptoms-eye-trouble-y-o-1785
Posted on 07/06/2017 15:11
Hope the steroids have started to improve your eye sight.
optic neuritis was my first dramatic symptom that lead to my diagnosis in 1996.
i have a lazy eye since I was a child, when I had optic neuritis in my better eye I was made virtually blind.
steroids worked relatively quickly but left me colourblind for months after.
As you said, everyone is different. Hope your sight is returning ?
Posted on 08/06/2017 08:59
Not yet, my eye seems to have stayed in the same position looking the other way. I've had ms 12 year and never had eye trouble so it's come as a shock. I'm only on day 5 post flare so early days but it's awful feeling and I just want to be able to see :(
Posted on 22/06/2017 20:01
Hieverybody, I too developed optic neuritis in my right eye. For quite a few years I had to wear glasses with one eye blacked out. But now I have started taking gabapenton which has helped loads, although not perfect, greatly improved. Now my eye still gets bad if I am really tired. I've also been slightly colour blind which may be connected?
Posted on 23/06/2017 09:40
My eye has come too luckily after a week. Worst experience of my life :(
Posted on 05/07/2017 17:55
Good job Kelly, hope it stays good.
Posted on 17/07/2017 16:32
I too got Optic Neuritis Nov 2013 and was finally diagnosed with RRMS last October a week before my 37th Birthday.
Posted on 18/07/2017 06:46
I developed my left eye going blind in 2015 when I went on holiday I was so scared, now I'm dependent on my right eye it does all the work ?
Posted on 19/07/2017 11:40
Thank you every one I was actually really lucky two days after my steroids it just came back to normal over night and not had any problem since. Been reviewed by my neuro who was happy with my recovery and said given my relapse history don't need to begin dmds yet. Back to the waiting game again now ?.
Posted on 20/07/2017 17:53
I went through the same as you. My neurologist refused to start me on Dmds as he wanted a definate diagnosis and at the time my health apart from my eye was good, and side effects from the drugs were not worth putting me through at the time. So after almost 3 years and 5 weeks of numbness/pins and needles down my right side he confirmed I had RRMS. I had MRI and lumber punctures the years before that and was told I had 85% chance.
Try and stay positive, eat healthy and exercise as it will help you.