- Home
- Share
- Forum
- Multiple sclerosis Forum
- Living with multiple sclerosis
- MS and the Coronavirus - How are you handling the pandemic?
Patients Multiple sclerosis
MS and the Coronavirus - How are you handling the pandemic?
- 1,717 views
- 49 times supported
- 64 comments
All comments
Go to the last comment
LindaBlacker
Good advisor
LindaBlacker
Joined in 2020
I've just been advised by someone on face book that we ms sufferers arent any more at risk than anyone else x
Scottydog
Scottydog
Joined in 2020
I spoke to my nurse a couple of weeks ago
As i take fingolimod i asked her whats the risk of contracting coronavirus she read out the last blood test 3 months ago and apparently my lymphocyte count is just below a average healthy human being, so iam no more oat risk than a healthy person
LindaBlacker
Good advisor
LindaBlacker
Joined in 2020
Hi scotty dog that is good news. We are a tough bunch us ms patients. Good luck xx
Courtney_J
Community managerGood advisor
Courtney_J
Community manager
Joined in 2020
Good morning everyone,
How are you today?
How are you managing your MS now? Is it more complicated this time of year? Have you returned to a "normal life" after these few months of lockdown? Have you noticed any flares or changes in your MS post-lockdown? Have you ben able to reschedule or resume any appointments or treatments?
Feel free to share! We are all here to help each other!
Take care,
Courtney
See the signature
Courtney_J, Community Manager, Carenity UK
nameless
Good advisor
nameless
Joined in 2017
@Courtney_J I'm doing alright. I'm still pretty much staying at home as I'm nervous about going out with everyone and taking public transport and going to the shops. I just finished a significant flare, worse than any I've had in a while, I wonder if the stress contributed? Hope all are well.
LindaBlacker
Good advisor
LindaBlacker
Joined in 2020
I've not had a good experience love. Last wednesday I had a bad fall. I'd broken my hip. Not in a good situation with this virus in hospitals. Hopefully with this heat it will keep it at bay. Hope your all doing well and keeping safe and strong x
Scottydog
Scottydog
Joined in 2020
Iam gd
Not worried about it personally, still up at 5 30 every morning, still doing things with the kids, on the plus side had a mri scan a week ago no new scars and disease is not active
Susiek
Good advisor
Susiek
Joined in 2018
@LindaBlacker I hope you are doing okay I too have secondary progressive ms and live alone in the beginning i was struggling with food shopping but now get delivery's once a week my friend used to come over and put it away for me but not seeing her just now just speak to her on the phone these are scary times for everyone I'm just trying to stay positive and i have my routine to do hope you can too🌈
LindaBlacker
Good advisor
LindaBlacker
Joined in 2020
Hi susie lovely to meet you. I do hope you keep well. Noticed nice havnt approved two drugs to help people with secondary ms. One slowed the decline. The other helped with mobility. Seems people with secondary ms are left out. Good luck x
Courtney_J
Community managerGood advisor
Courtney_J
Community manager
Joined in 2020
Hello everyone,
How are you holding up now that winter holidays are approaching?
Have you been able see your neurologist or other doctors? Have you thought about getting the COVID-19 vaccine if and when it becomes available to you? Do you know if MS patients will be able to get it?
@Toya911 @JoanJordan @BenGuy @Rolley5 @Avbye1 @Bookie @KClews @Dmarie67 @Shipley71 @Melfie @Joooly @Acceber @Pangelina @Jennibowles @Jolly1980 @Fluffyman @Rubytheareggienan @Shazza
Feel free to share here!
Take care,
Courtney
See the signature
Courtney_J, Community Manager, Carenity UK
Give your opinion
Survey
Survey
Members are also commenting on...
Articles to discover...
24/04/2024 | Testimonial
Multiple Sclerosis: “I am a warrior, and I will overcome this illness with love and positivity.”
17/11/2023 | Advice
21/09/2023 | Advice
19/05/2017 | Testimonial
23/03/2018 | News
13/06/2016 | News
02/10/2018 | Advice
Medication fact sheets - patient opinions...
Subscribe
You wish to be notified of new comments
Your subscription has been taken into account
Courtney_J
Community managerGood advisor
Courtney_J
Community manager
Joined in 2020
Hello dear members,
While the Coronavirus epidemic concerns many across the UK (and Carenity members too), I've created this discussion to allow you to talk specifically about the virus in the context of cancer, as we all know that patients can be weakened by their treatments.
Have you had any special instructions from your doctor regarding your care? Are you going to limit your travel? Do you have any advice for others?
Take care,
Courtney